
Klippel-Trenaunay-Weber Syndrome Support Group
Klippel Trenaunay Weber syndrome (KTWS) is a medical condition in which blood vessels fail to form properly. Although the cause and processes surrounding KTWS are poorly understood, the disease is diagnosed by the presence of at least two of the symptoms on a single extremity: A distinctive port-wine stain with sharp borders, Varicose veins, Hypertrophy of bony and soft...
Genetic & Metabolic
Klippel-Trenaunay-Weber Syndrome Support Group

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My son was diagnosed with KTWS at birth and is soon turning a year old. He is beginning to cruise and I know walking is... READ MORE
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hi I’m 42 struggling with Klippel traunmy syndrome I wear support stocking from the time I get up in am to when I go... READ MORE
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Does anyone know of a support group for KTS in Australia? I'm 64 and only found out about 5 years ago that what was... READ MORE
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Need help writing an IEP for my daughter going into the public school system. The school system has no knowledge of KTW... READ MORE
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Need help writing an IEP for my daughter going into the public school system. The school system has no knowledge of KTW... READ MORE
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My husband was dianosed with KTS at birth he is now 31 years old and has suffered so much because of this. we have... READ MORE
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Hello,Im a 27 year old girl from Europe and I would love to talk to people who have KTWS. I was diagnosed since my... READ MORE
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Hi,I just wanted to introduce myself. I notice there haven't been any posts for a while on this topic. I am 47 and I... READ MORE
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I want to get a tattoo for my brother with kts, does anyone have any cool ideas?
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Hi, I'm Lauri and new here. I have a 30 y/o son with KTW primarily affecting his lower extremities. He had two... READ MORE
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My daughter is 22 years old and was diagnosed at birth with KTW. Doctors told us to wait and see want happens,she had... READ MORE
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My mother is 76 and has KTS. Recently the pain has increased in her hip and knee but she is not a candidate for... READ MORE
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I have a 3 year old daughter, at 8 months she was diagnosed with Klippel-Trenaunay-Weber Syndrome. During my pregnancy... READ MORE
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I was diagnosed with KTW when I was 4. I have recently written an article about my own life with KTW and want to share... READ MORE
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I need help to find a Dr. in Atlanta or in the metro Atlanta area who knows about KT. None of my Dr's seem to know... READ MORE