Klippel-Trenaunay-Weber Syndrome Support Group
Klippel Trenaunay Weber syndrome (KTWS) is a medical condition in which blood vessels fail to form properly. Although the cause and processes surrounding KTWS are poorly understood, the disease is diagnosed by the presence of at least two of the symptoms on a single extremity: A distinctive port-wine stain with sharp borders, Varicose veins, Hypertrophy of bony and soft...
My mother is 76 and has KTS. Recently the pain has increased in her hip and knee but she is not a candidate for surgery due to risks with KTS patients. Has tried cortisone shots to both areas but they were not effective. Seeking any other options out there. Apparently also not a candidate for synvisk or rooster comb injections. Thanks for any help.
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Ask about a lympahtic wrap, it may reduce fluid in the limb and pressure off the joints.
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Is anyone here allergic to Sulfa that is currently taking Diamox? I have been diagnosed with IH now for almost 2 years. I am allergic to Sulfa drugs meaning that my throat will swell up so my Neurologist put me on Topamax. I was suffering from major loud whoosing noises and the topamax helped that but everyday I still hear those mainly between 6 - 12 pm. I am at my wits end and have not went...
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My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...