Klippel-Trenaunay-Weber Syndrome Support Group

Klippel Trenaunay Weber syndrome (KTWS) is a medical condition in which blood vessels fail to form properly. Although the cause and processes surrounding KTWS are poorly understood, the disease is diagnosed by the presence of at least two of the symptoms on a single extremity: A distinctive port-wine stain with sharp borders, Varicose veins, Hypertrophy of bony and soft tissues that may lead to local gigantism.

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Any Non-Surgical Treatments for Hip/Knee Pain?

My mother is 76 and has KTS. Recently the pain has increased in her hip and knee but she is not a candidate for surgery due to risks with KTS patients. Has tried cortisone shots to both areas but they were not effective. Seeking any other options out there. Apparently also not a candidate for synvisk or rooster comb injections. Thanks for any help.

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deleted_user
deleted_user

Ask about a lympahtic wrap, it may reduce fluid in the limb and pressure off the joints.
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