pris72

About Me

I am a complex person. I was born with a rare mascular malformation disorder called, Klippel trenaunay syndrome. Approx 1 in 40, 000 are born with this. I also suffer from interstitial cystitis, which I was diagnosed with back in 2000. I started having bladder issues as a teen. Many urine tests showed blood in my urine, but never no infection. I get chronic migraines. A CT scan says that I have pseudotumor, but the neurologist that I see says I do not have it. Ok, well why did the CT Scan show it? I get awful, awful migraines where my vision gets blurry, and even times where my speech will slur and I will go numb in certain parts of my body. I had my gallbladder removed back in 1997, and I still have the same pains that I had when I had my gallbladder still inside of me. I am trying to find a Dr. who will believe me, and run tests to check my bile duct. I had a colitis flare up in June 2011. I was put through a battery of tests to see if I have Crohn\'s disease, since my Dad has it. My colonoscopy was normal, and prometheus testing was negative for it so I still do not know the cause of that pain and problems. Last there\'s my female issues. Good ole endometriosis, only I can not get my Gyn to do a lap. Right now she has me on nora-be BC pills. Yes they are helping with my period, BUT they are not helping at all with the pain and chronic diarrhea that I get while on my period. *sighs*