Hi, I'm Lauri and new here. I have a 30 y/o son with KTW primarily affecting his lower extremities. He had two surgeries in the early 80's at the University Of Michigan with Dr. Markley, a plastic surgeon, do do ray amputations of 5 toes and debulking. His care was then transfered to Dr. DeVito, an orthopedic doctor who removed growth plates and performed reconstructive surgery. Unfortunately, Dr. DeVito passed away several years ago and he has not seen a Dr. primarily for his KTW. His left lower extremity is more involved than his right and lately has had worsening of symptoms...particularly swelling, pain and sever skin dryness. A month and a half ago he developed a pulmonary embolism and can't help but wonder if his KTW may have played a part in this development. No DVT was found and no one seems to know how he developed the pulmonary embolism. He was refered to a vascular surgeon who is not familiar with KTW. Is there a physician in Michigan who my son could be referred to to manage his condition? I would appreciate any suggestions or direction at all. Thanks! Lauri
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