Klippel-Trenaunay-Weber Syndrome Support Group

Klippel Trenaunay Weber syndrome (KTWS) is a medical condition in which blood vessels fail to form properly. Although the cause and processes surrounding KTWS are poorly understood, the disease is diagnosed by the presence of at least two of the symptoms on a single extremity: A distinctive port-wine stain with sharp borders, Varicose veins, Hypertrophy of bony and soft tissues that may lead to local gigantism.

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Personal Stories

I was diagnosed with KTW when I was 4. I have recently written an article about my own life with KTW and want to share with others who are going through the same thing. The site is http://www.squidoo.com/klippel-trenaunay-webber-syndrome-my-story