Keratoconus Support Group

Keratoconus is a degenerative non-inflammatory disorder of the eye in which structural changes within the cornea cause it to thin and change to a more conical shape than its normal even curve. Keratoconus can cause substantial distortion of the vision, with multiple images, streaking and sensitivity to light all often reported by the patient.

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  • TheSparkleDiva

    TOPOGRAPHY-GUIDED PRK or Intacs ?

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    Has anyone in the support group had either of these procedures?  Also, I'd love to hear of anyone's experiences with collagen crosslinking.
  • jrodimon

    53 year old programmer I need advice

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    I was diagnosed 4 years ago but I think this is what my main vision issue since my early 20's. My symptoms have progressed to where I don't feel safe driving at night and I am having difficulties with my job.I am interested in how other suffers handle 8 hours a day in front of a computer then try to drive home after dark. I am afraid to tell my boss or HR about my condition I just hope there is...
  • TheSparkleDiva

    Worried about procedures

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    I was diagnosed with Keratoconus about 5 years ago.  First I was given the rigid contacts but could not tolerate the discomfort.  After many months of trial and error I found a soft lenses that allowed some corrective vision, but it was not perfect.  As the years have passed I can no longer drive at night.  I just turned 25+15 years old (I'm not ready to use the "F" word yet) and I'm living...
  • Ebony

    Why me?

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    My keratoconus has gotten progressively worst! I was diagnosed three years ago. Believe me when I tell you, I went to sleep with perfect vision and woke up not being able to read from afar. First year the contacts worked great. Second year my vision got bad and I got another pair of glasses. Also worked great. Third year (this year 2017) I got another pair and still couldn't see so I went to see...
  • drstout

    Minneapolis Area Eye Doctor

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    I joined the group to offer any support that I can and to answer any questions.  I have clinics in the Minneapolis area and have a subspeciality in contact lenses and helping people with degenerative corneal diseases see better with contact lenses.  Please feel free to contact me if you have any questions.
  • msdavis007

    Lost

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    i was diagnosed with KC, fuschs and just recently dry eye syndrome. I initially got the hybrid lenses which helped but I could not wear them long with the dry eye. I went on a dry therapy treatment of restasis and artificial drops. I was then advised I had allergy bios up and was prescribed a eye drop which reversed the help restasis was starting to give me and my eyes felt worsei got newer...
  • Mercori

    What are the options to see better?

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    Hi, I have KC since 17 year. Started with RPG which worked well till 5 years ago. Because of a scarr I had to start using a piggy back system that was way more comfortable but the vision not very stable. At some stage a year ago I decide to do something beacause my vision was not good and at night I had difficult to function; so and tryed hybrid lenses. I saw the word as it really is for 2 day, 4...
  • msanonymous94

    New KC patient, is it possible to do an awareness?

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    HEAR ME OUT, please.The eye disease - keractoconus started to process since April, 2015 and my head felt worse back then. It was so horrible that the doctors assume I had a vertigo. I didn't go out anywhere, I was afraid to go out because my eyes couldn't look at any light. I was even losing balance within that two weeks and after two weeks, the vertigo was gone but my vision still wasn't clear....
  • cpatel

    KC and driving

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    I have been suffering with KC since 10 years. I am wearing scleral lenses for 4 years. I don't get very good far sight vision. I never drove at night, but since 2 years i am scared to drive during day time too. I am having real hard time while changing lanes to make judgement for distances between cars, while stopping at traffic signal. Basically, having problem making depth perception. Do other...
  • vipati

    Brestfeeding after C3R treatment

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    Hello All,My wife is having Keratoconus in both the eyes. Her left eye is more affected from the same. We have 9 months old daughter. On 20th Sept. 2016,  she took C3R treatment in her left eye. After C3R treatment, doctor came to know that we are having 9 months old baby. Actually, we gave this information to receptionist before the treatment but somehow he did not inform about this to the...
  • corey777

    Just diagnosed. What to expect?

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    Hi Everyone,I've suspected that I had keratoconus for many years. However, my optometrist insisted that I had irregular astigmatism that was stable, noted no scarring on my cornea and apparently did not notice any abnormal topography. My vision has really been falling off of a cliff lately, so I went to a new optometrist, who immediately diagnosed keratoconus. I was referred to a surgeon. Saw...
  • vipati

    How to prevent my baby from Keratoconus?

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    Hello All,My wife is suffering from Keratoconus in both the eyes. Her left eye is impacted more and is under observation of opthalmologist.As per my knowledge, Keratoconus can be because of genetic. Excessive eye rubbing also cause Keratoconus.I have 6 months old daughter. She rubs her eyes very frequently and specially her left eye. I am worried about her and want to prevent her suffering from...
  • vipati

    Preventive steps for Keratoconus

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    Hello All,My wife is suffering from Keratoconus in both the eyes. Her left eye is impacted more and is under observation of opthalmologist.As per my knowledge, Keratoconus can be because of genetic. Excessive eye rubbing also cause Keratoconus.I have 6 months old daughter. She rubs her eyes very frequently and specially her left eye. I am worried about her and want to prevent her suffering from...
  • Hi,I am an Optometrist that has newly relocated to a private practice in Washington DC. I specialize in medically necessary contact lenses, such as sclerals, mini-sclerals, hybrids, RGPs, and custom soft lenses. Since I am new to the area, I am taking on new patients at this practice and working on growing my online presence in order to give keratoconus patients an option in their eyecare...
  • changedmyworld

    My world changed 100% for the better

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    I'm NOT a doctor or practitioner, I'm a 50 year old guy who thought life was over because of my keratoconus.I now see 20/25 with BOTH EYES!