Keratoconus Support Group

Keratoconus is a degenerative non-inflammatory disorder of the eye in which structural changes within the cornea cause it to thin and change to a more conical shape than its normal even curve. Keratoconus can cause substantial distortion of the vision, with multiple images, streaking and sensitivity to light all often reported by the patient.

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  • Hello All,My wife is having Keratoconus in both the eyes. Her left eye is more affected from the same. We have 9 months old daughter. On 20th Sept. 2016, she took C3R treatment in her left eye. After C3R treatment, doctor came to know that we are having 9 months old baby. Actually, we gave this information to receptionist before the treatment but somehow he did not inform about this to the...
  • I joined the group to offer any support that I can and to answer any questions. I have clinics in the Minneapolis area and have a subspeciality in contact lenses and helping people with degenerative corneal diseases see better with contact lenses. Please feel free to contact me if you have any questions.
  • cpatel

    KC and driving

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    I have been suffering with KC since 10 years. I am wearing scleral lenses for 4 years. I don't get very good far sight vision. I never drove at night, but since 2 years i am scared to drive during day time too. I am having real hard time while changing lanes to make judgement for distances between cars, while stopping at traffic signal. Basically, having problem making depth perception. Do other...
  • corey777

    Just diagnosed. What to expect?

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    Hi Everyone,I've suspected that I had keratoconus for many years. However, my optometrist insisted that I had irregular astigmatism that was stable, noted no scarring on my cornea and apparently did not notice any abnormal topography. My vision has really been falling off of a cliff lately, so I went to a new optometrist, who immediately diagnosed keratoconus. I was referred to a surgeon. Saw...
  • Hello All,My wife is suffering from Keratoconus in both the eyes. Her left eye is impacted more and is under observation of opthalmologist.As per my knowledge, Keratoconus can be because of genetic. Excessive eye rubbing also cause Keratoconus.I have 6 months old daughter. She rubs her eyes very frequently and specially her left eye. I am worried about her and want to prevent her suffering from...
  • Hello All,My wife is suffering from Keratoconus in both the eyes. Her left eye is impacted more and is under observation of opthalmologist.As per my knowledge, Keratoconus can be because of genetic. Excessive eye rubbing also cause Keratoconus.I have 6 months old daughter. She rubs her eyes very frequently and specially her left eye. I am worried about her and want to prevent her suffering from...
  • Hi,I am an Optometrist that has newly relocated to a private practice in Washington DC. I specialize in medically necessary contact lenses, such as sclerals, mini-sclerals, hybrids, RGPs, and custom soft lenses. Since I am new to the area, I am taking on new patients at this practice and working on growing my online presence in order to give keratoconus patients an option in their eyecare...
  • I was diagnosed 4 years ago but I think this is what my main vision issue since my early 20's. My symptoms have progressed to where I don't feel safe driving at night and I am having difficulties with my job.I am interested in how other suffers handle 8 hours a day in front of a computer then try to drive home after dark. I am afraid to tell my boss or HR about my condition I just hope there is...
  • I'm NOT a doctor or practitioner, I'm a 50 year old guy who thought life was over because of my keratoconus.I now see 20/25 with BOTH EYES!
  • deleted_user

    Tamoxifen & Clomiphene Citrate

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    Its well known that thouse medications may cause corneal changes.I have kertaconus in both my eyes.and I've just had crosslinking in my left eye a few days ago.Tamoxifen and Clomiphene citrate side effects may cause corneal changes, I havn't took those med's yet but, if I will take it for a short-term lets say for a month.could it worsen my kerataconus disease?
  • My doctor is kind of alarmed if I have keracotnus or high astigmistim.My cyclinder in my left eye has gone up quite high from -2.75 to -575.He has blabbed the word Keracotnous to me but is not quite confirmed.anyone with similar situation? I work on the computer 9 hours a day non-stop doing mostly reading medical charts/print.Could this change be related to computer work?I am scared I might go...
  • HEAR ME OUT, please.The eye disease - keractoconus started to process since April, 2015 and my head felt worse back then. It was so horrible that the doctors assume I had a vertigo. I didn't go out anywhere, I was afraid to go out because my eyes couldn't look at any light. I was even losing balance within that two weeks and after two weeks, the vertigo was gone but my vision still wasn't clear....
  • hello, I am looking for specialist recommendations in the NYC and Long Island, NY areas.'Thanks.
  • Hi, My brother has cornea transplant in both eye, and he has to do another treatment Lamellar keratoplaty, that is like a transplant. I was researching about cross linking. Does anyone try this new treatment?
  • jrodimon

    Just diagnosed

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    Well I have had vision issues since i was 20 but was told it was far sided-ness and never questioned why my glasses never seemed to work well. I am now 50 and a software engineer (impossible to get through the day without a headache, sore eyes or stress) I have just been diagnosed from a very shocked doctor that was amazed that he was the first to explain this to me. I went to him since i...