Hi Ebony.

I had cross linking done on my right eye, July 2016.. I only had that eye bc I am scheduled for a transplant 5/1/17 on my left. I have had improvement in my vision since the surgery and hope insurance companies will cover it. I was diagnosed about 11 years ago at 22 and would have been grateful to have the resources to pay for it then or even access.

Hang in there. I actually just joined this forum bc I am overwhelmed and depressed about my vision. I have a restricted drivers license and a 6 years old daughter who cried her heart out when we had to stop going to evening activities bc I can't see at night to drive. I am hopeful that the transplant will work and improve my vision. I have private insurance through my employer and managed to save the costs in my HSA but I wish this treatment was more affordable .

Anyhow, if you can get cross linking, try it. It won't restore your vision to 20/20 but it will stop the progression.

Hi Ebony. I read your message. How are you doing here in June. I have KC as well. It sucks. Mine was kinda weird. Here is my problem....... i have to say its all been weird. diagnosed with mild KC in left eye 2 years ago. Had CXL on that eye and it seems to have stopped the progression. my right eye is still 20/20. I am farsighted. Contacts irritate my eyes so the doctor recommended glasses. I got glasses with the anti glare stuff and everything. Put them on and wore them all day. I could definitely see but when night fell is when I started seeing halos and whatnot. I took them off but have seen that ever since. They seem to be getting worse but my vision is still 20/20 in my right eye. Does anyone have any explanation for that?

I had the cross linking done, Honestly it was a bit painful on the recovery. I was like sever eye strain with all the bright UV lights they use. but this is to stabilize the cornea from getting worse. I have read that some times it is necessary to do it twice. My vision has not improved. However I see more then one doctor, one from the Veterans administration the other is a cornea specialist in NJ. Both seem to notice an improvement in the stability of the cornea tissue. see if you can get the cross linking done.

For those who have trouble seeing at night. Try Blue blockers or the yellow lens sunglasses. it helps a lot. You can get the ones that fit over your regular glasses. you will look like one of the X-men but you can see better. It also helps my eye strain through the day. If i start in the morning protecting my eyes from the light i can last longer in to the night. I have clip-on's also $8 at Walmart. Experiment with different colors. The glasses help when I am on the computer. I also adjusted the background colors from white to orange or pink as it is softer on my eyes. I also found that when I am out side that if I ware a hat with a visor it helps cause it blocks the sun from the top.