Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.

Good morning!
It's going to go from screaming wet to screaming hot here. Ow ow ow. Today is Transition Day on temperatures. The big jump. To be blunt, I am one of the FibroMighty who finds heat/humidity far worse than cold. Not least b/c I don't think I'm genetically programmed to cope with it, LOL. My DNA is way north of this temperature zone!
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So, other people don't work weekends, and some do. I married one who does. This means weekends are, for me distinguished primarily by ... uh... well, the doctors are all closed? LOL. What maeks the weekend a weekend for *you*?
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Conversations you rarely overhear unless yo ulive at my house:
Me: HONEY!
Hubby: WHAT?!
Me: I need the doggie bag.
Hubby: The poop one or the feeding one?
Me: Feed bag! Oh, and call the neigbhor. We have their dachshund again.
Hubby: Which one?
Me: Only one neighbor has dachshunds, babe.
Hubby: No, which one of their dachshunds?
(Dacshund returned home without further incident. Just wanted to come say hi, apparently. ???)***'
OK, I'm back. Took a break. Had to. LilMiss gave us another gift. She was tossing and gamboling and such in the sunbeams, and is waiting for Hubby so she can prance up and present her kill properly. ***
And on that note, I'm apparently off to do what I do every day. Yep. Wrangle the critters. Oh, and that counts Hubby, LOL. Yeesh. This was his face as he came into the house. ...(With respect to the late great Boris Karloff, of course)
BLessed day, all! May you have no Franken-funky fibro-ness!
EDITED B/C DS ATE MY SPACING.
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I'm talking about the Lindsay Clancy mistrial. Why didn't the Judge substitute an alternate for the male juror who refused to follow the law? He singlehandedly caused a mistrial. Apparently, he thought that he knew better than the other 11 jurors. If you can't tell by now, I wanted Lindsay to be acquired if criminal responsibility, as did the other 11 jurors. Having had a psychotic...
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OK. Flooding in my state, my home state, the state next to my home state, states in the SOuthwest, states everywhere, and yet.... massive drought.Universe has a ssense of humor.Meanwhile, Dahlia figured out the on button on her automatic spin-the thingy in the air toy. Tht's fun to wake up to.***Happy Labor Day Weekend! Why do we celebrate labor? Well, without it, where are we? Without...
Feeling a bit depressed today, 13 years ago my parents found out I was suicidal, screamed at me for like a week, and forbid me from talking to the people who I had confided in. My neighbors were in the middle of an argument that I could hear from my front door this morning which is a huge trigger for me. Just trying to get through the day
And my apologies to all for the silly formatting errors. Honestly, DS will be nice to me and then... WHammo! I'll try to fix it for easier reading, all.
Pray you all have a great weekend.
Miki, sorry that you are feeling depressed today. I was very down yesterday. Yes, we will get through today. Leo-It will be extremely hot over here too. I know exactly what you are talking about. Hope you have a wonderful day.
Pam
Leo, That is not a pretty picture of hubby coming home from work. LOL. I hope when he comes home today he looks better than that. If not, it sounds like you might needs some chocolate to get through your weekend. I hope the trip to your moms isn't too bad. Did you guys find someone to clean yet?
Miki, I know this day is very tough for you, I get that. I'm praying you find ways to distract yourself, and hopefully stay clear of any more screaming that triggers you. And believe me I can't handle the screaming, too many triggers myself from an alcoholic father growing up.
Pam, They don't classify Fibro as a disease because it doesn't cause actual damage to your body. However, not all doctors agree with this. My neurologist has studied Fibro extensively at the OU Medical Center and he believes most patients get Small Fiber Neuropathy that progresses and affects more. With that said, he believes it is a disease because there is proof of fibro patients having nerve damage and more. Unfortunately, your doctor thinks like most. I hope you like Gabapentin for your pain, which by the way helps with nerve pain. I couldn't stand the stuff, but a lot of people get relief with it. Good luck and blessings on your weekend.
The girls had the best night at camp yesterday. Their team won the best chant, and I got there in time to see them do it on stage and get the trophy. :-) They go back today from 11-2, a much better time. While they do that we are going grocery shopping. After I pick them up we are going to go order their cakes for July 7th. I'm hoping we have time to get some party decor after that, but it's been so busy I don't know yet. My pain is pretty bad and the girls want to go swimming. I told them no time today but maybe tomorrow. Their grandma has a pool and she always loves seeing them.
I really hope everyone has a great weekend and that you all can enjoy something today.
Sorry, but I giggled at the Frankenstein picture because I know at least half of us here wake up feeling like that. That poor hubby of yours, though. lol
Weekends are pretty good for us here... hubby usually has 3 days off because there are no classes on Friday. Sometimes a meeting. But it's summer time now so the week is flipped and he usually works the boat on the weekends when he's not away on his annual trip.
Sleep was crap last night. I woke up so many times I don't know if I rested at all. I did go to the drug store and bought a sleep aid but not my usual one (guess I'll have to order that from Amazon). This one is called Somnapure.... it was either that or a tylenol PM product because that's all they had. And they have a new rule now that you have to be 21 to buy a sleep aid and wanted to check my ID, how weird.
I swam a few laps at the pool yesterday after errands. And of course mom came, she wants to come everywhere I go now. And whenever I put a movie on in the living room, she has to watch with me too. If I want to watch alone, I'll have to go to my room and watch on the laptop. But I don't like being confined to my room too much, I'd like to enjoy the rest of the house too.
Vog numbers are better today according to the website... yesterday was in the yellow and today is back in the green. A high green, but at least green. Nonetheless, I still coughed in the night with a scratchy throat and this AM woke to feeling like something was sitting on my chest. It's been in the 70s this month and last, so maybe this means we'll have a cool summer? I still have to throw sweats on in the morning which is weird. Leo, you can come out this way to get away from the heat :)
I plan to pick up the house today and cook a pot of Ukrainian Borscht. Hubby and I have an appt to skype later and go over the budget.
Miki, I'm sorry your neighbors fighting brought back that bad experience from the past. I hope your weekend will brighten for you. When I hear people screaming at each other it reminds me of my abusive ex. He was a Marine too and felt the need to shout down at people (especially me) to get his way. It really jangled my nerves. It's a good thing those days are over. When I hear people shouting, I feel thankful that isn't me anymore.
Angela, Sorry you're feeling so crappy. I hope you do NOT go down hill and things improve. Also that you have a restful weekend.
Good to see you, Pam. I hope you are having a blessed weekend.
Twins, yay for a good day at camp and winning a trophy!! And whoohoo for a mid day time slot today, not at night. Hopefully that's a bit easier on you. You sound so busy, I hope you can get things done without much trouble. Sending chocolate energy bars your way!
I had a rough night too. Interrupted sleep, could not get comfortable and I woke up to early. I keep trying to stretch out my back and it doesn't work. I finally got up at Noon. Since then, I've been busy. I made a batch of brownies, prepped for salad and homemade pizza tonight for dinner and have been doing my normal chores. I am waiting on the mail to see if my passport paperwork is there. I want to get it to FedEx today if possible.
I wanted to mention that I've tried a new OTC pain cream that I like very much. It is called Ted's Brain Science Pain Cream. Stupid name but it got a mention on NPR which got my attention. It works differently than other pain creams in the way that it addresses the nerves causing the pain. You have to order it online. It seems to be very effective but it does smell like Wintergreen. If you don't mind smelling minty fresh this is a good option. The more you use it, the better it works. I've been pretty impressed with it.
Leo - My partner comes home looking like that pretty often lol. They are really busy at work. Unfortunately, a lot of the new people that have moved into the office building where the café is located are pretty nasty. Not sure if its a corporate culture thing or what. He gets really frustrated with their behavior when he and the rest of the employees make a point of being very pleasant. I am aghast at some of things that these people say to the staff.
Miki - I am sorry that you are triggered today. I can understand why and adding in the neighbors arguing doesn't help. I hope that you can get through your day OK. Hugs1
AngelaJo - I am really glad that you get to stay home today and do nothing. And, that your friend did not come over and bring sickness with her. I've had to interrogate guests before they come and remind them that if they have a cold, think they might be sick or just getting over something to stay home. I know steroids are really rough on you between the sugar issues and being up and down all night. You are doing an amazing job of advocating for yourself and getting better. Keep up the good work and have a nap or three today. Hugs!
Hi Pam - I hope that you have decent day. Try to let the stuff with your rheumy go. It's a waste of energy that he doesn't deserve. Hugs!
Twin - It sounds like the girls are really settling in to camp very well. Too bad we can't go to camp and have some time off too. Like Hallmark movies and chocolate sampling camp or something. I hope that you can get your errands done and then do something for yourself. Fingers crossed.
Hi Blue - Sorry that the Vog is such a nuisance. I wish that your Mom would give you some space. You are not alone in the no/poor sleep department. I will interested to hear if you like that sleep product. I got Alteril on your recommendation and it works pretty well most of the time. I hope that your borscht is yummy. Enjoy your day!
Hi Lilmissy7 - Nice to see you on check in! I hope that your day is decent!
Shout out to Bear, Ida, Shakota, Autumn, JP, Wonder and Milily. I will check back later. Group hug!
Miki I am sorry that you are triggering right now. I am sending lots of love and support your way. I hope things quiet down so you can find your center. Take special care of you today.
Twins it sounds like the girls have really taken to camp. I am glad that you can get the shopping done while they are busy. I hope that tomorrow you can all enjoy a swim and relax a bit.
Blue I worry about the vog that you are dealing with. I hope you are able to stay indoors and not have to be out in it.
Fantod it seems many of us are having trouble sleeping lately. I am going to the sleep dept. of our hospital so they can try to find a way to stop my insomnia.
Angela you are doing so good standing up for yourself and getting the help you need. I am so proud of how hard you are working to get the best care.
Lilmissy I hope you have a great weekend.
I went with my partner to do the Costco run. I decided it was way bigger a project than I could do. It really helped and I am now laying in my chair with so much pain I am considering a pain pill. I try not to use them because they can be addictive and I don't want to go there. It is going to be a quiet weekend for me as temps are rising and I can't take the heat. My partner and her daughter are going out for sushi tomorrow and she has a play to go to tonight so quiet for me.
I hope you all have a great weekend. Hugs and support for all those struggling.
That picture is funny. I perhaps dont look that bad when I get up, but I feel that way.
Didnt sleep well again - this time from drowning in snot and the resulting coughing , from the virus that never ends. My son says it was the last stages of the virus for him .
So much to do, cleaning house etc before my brother gets here and packing , and the laundry , laundry, laundry. And with so little energy and ability.
Because of my ex , I cant tolerate screaming and angry men. Also, he was a bully. Even on TV and Movies if there is character like that , with that personality, it gives me anxiety big time , with a possible panic attack.
We went to our daughter’s for a Father’s Day brunch and some card playing this morning. When I came home I rested after sitting on their dining room chairs for 2 hours. Wow, am I in pain. Good to see the grandkids though.
Tomorrow afternoon I take hubby to the airport as he is heading to Florida until Thursday.
I skipped PT yesterday as I woke up with a bad headache. I called the therapist to find out what the doctor decided, and she hadn’t heard from him yet. So I guess I go to PT on Monday. If I rest my arm, it starts to feel better. If I do anything with it, it hurts.
Take care, all.
I got a huge prayer request, Pastors parents were in a car crash today, they were married almost 70 years and his mom died on the way to the ER. His dad has many broken bones but will be ok, physically, Hes a mess mentally. Pastor is on a flight out there now and pastors wife and son and family are driving out. Its in maryland.