Fibromyalgia Support Group
You're not alone in your pain. Fibromyalgia is a condition that can be difficult to diagnose and manage. If you're trying to cope with pain throughout your body, sleep problems, general fatigue, or other common fibromyalgia symptoms, you're in the right place. The community is here for you to talk about therapies and share your challenges.
Shlay
Hello, everyone! I haven't been on it quite some time.
My concern right now is this: I am flying across the country (from NY to AZ) for three weeks, to look after my grandmother and my fathers dog, while he is out of town.
I have no idea how I am going to be able to keep up a constant level I energy! The other day, I fell on my "bad knee" (the one I had surgery on) and it is still affecting me badly. I've also had a pretty bad cold/flu bug for the past week. Other than Fibro, I have other medical problems. I saw my doctor, and he OKed me to fly.
When I get to AZ, I am expected to take my dad's large dog on many walks, and do almost everything for my grandmother. These are things I would normally love to do, but I'm having a pretty bad "flare up." I find it hard to stay awake, and when I do sleep, it's fitful.
I'm terrified to show that I'm not well to my dad and gram. I'll be turning 26 this month, and I shouldn't be having this kinda of pain or this slowed down. I feel so utterly weak and broken. I don't want ANYONE to see me like this.
Usually, I just push myself until I break (which seems to be happening right now) and not showing my pain. My dad expects a lot from me, and my grandmother dearly needs help.
So my question is: When you are already broken down, how do you keep pushing forwards? I don't want my family to think I'm lazy or some crap like that, and I'm so scared of judgement. How do you all keep going? I won't be able to take my pain pills, because I'll be driving a lot, and they throw me for a loop. Do any of you have some holistic ways of keeping your body from shutting down on you?
I'm so scared. I'm already in so much pain. Any and all advice would be greatly valued!
My concern right now is this: I am flying across the country (from NY to AZ) for three weeks, to look after my grandmother and my fathers dog, while he is out of town.
I have no idea how I am going to be able to keep up a constant level I energy! The other day, I fell on my "bad knee" (the one I had surgery on) and it is still affecting me badly. I've also had a pretty bad cold/flu bug for the past week. Other than Fibro, I have other medical problems. I saw my doctor, and he OKed me to fly.
When I get to AZ, I am expected to take my dad's large dog on many walks, and do almost everything for my grandmother. These are things I would normally love to do, but I'm having a pretty bad "flare up." I find it hard to stay awake, and when I do sleep, it's fitful.
I'm terrified to show that I'm not well to my dad and gram. I'll be turning 26 this month, and I shouldn't be having this kinda of pain or this slowed down. I feel so utterly weak and broken. I don't want ANYONE to see me like this.
Usually, I just push myself until I break (which seems to be happening right now) and not showing my pain. My dad expects a lot from me, and my grandmother dearly needs help.
So my question is: When you are already broken down, how do you keep pushing forwards? I don't want my family to think I'm lazy or some crap like that, and I'm so scared of judgement. How do you all keep going? I won't be able to take my pain pills, because I'll be driving a lot, and they throw me for a loop. Do any of you have some holistic ways of keeping your body from shutting down on you?
I'm so scared. I'm already in so much pain. Any and all advice would be greatly valued!
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Long answer: A few points
1. You'll be judged no matter what. People who are 70 are judged for the FM diagnosis. I was a teen when I had a severe knee injury and was judged for it then. The judgment comes no matter what. The trick is to not judge *yourself*, okay? Just let that one go. The Big Cosmic DIvine can judge you, but until they're in your skin, the human race has to step back, and you can tell them that....
2. Leading to point 2: You are Your Own Best Advocate. Stand up for yourself (so you can *lie down*).
3. If we had the cure for FM, we'd tell ya. Don't got it. Wish we did. Wish I did. Wish *someone* did.
4. Sleep is your best medicine. (Sorry. Sad but proven true.) If you can get better sleep using melatonin, or L-theanines at bedtime, then those are both holistic safe ways of helping yourself sleep. Also, lemon balm or chamomile tea can help (if you have no hay fever type allergies, which some herbals can trigger, including chamomile).
5. Nutrition. Big big thing. When I'm hitting a worse-than-usual patch, I drink extra water, and whiel I eat a vegetarian-no-processed-food diet anyway, I really add in the B vitamins and electrolytes (calcium, sodium, potassium, magnesium). That seems to help me. I add it into my diet, since supps are expensive and not regulated for quality anyway.
6. I'm sorry your family expects so much from you---and obviously, you expect it too. TO quote Tony Robbins, stop "shoulding" all over yourself, okay? Saying "No, I can't, and that's that" is *terrifying*---but doing it is necessary for both physical and mental health with chronic pain issues.
And that is how I deal, as much as I can. I have other issues than FM, and people won't even freaking lay off me for those---and it includes *spine damage*. For pity's sake! *eyeroll* Humans. Ugh.
One last thing---"I shouldn't"---doesn't apply. People are born ill, get ill at any time in life, stay ill for decades, etc. Your age is not relevant here, okay? NOT relevant. Please, think this through, okay? It's a real struggle for a lot of us. But there's people who die of cancer before they're old enough to go to school---who are dx'd with multiple sclerosis in their late teens---or die of self-inflicted stupidity at 26 like my older sister did. Age isn't relevant. Truly isn't.
Sorry to rant/lecture, but wow, you sound just like I did at that age---and my sister. So I triggered. (PTSD. Sucks.)
Gentle healing and peace to you,
Leo
I am 26 right now and feel just like you. I have other issues too, like schizophrenia, and just feel broken sometimes. People expect too much of eachother. They don't realize sometimes that everyone has pain, emotional or physical or both so everyone should be understanding even if they can't understand the amount of pain, ya know? Not sure if that made sense.
I would be honest with yourself and your abilities for the moment and your family and if they don't believe you or respect you for that then they aren't much of a family are they?
Sorry if this sounds rude, sometimes I don't have much of a social filter...
You are committed, so you'll have to go and just do the best that you can. "No" is something that you can and should learn to use. While you are there and when you get back home.
There is no holistic/ effective way to manage this illness. You'll need to eat properly, take your medication, stay hydrated and rest. If Grandma has to miss a social outing because you are unable to drive, so be it. You need to rest/sleep no matter what anyone has to say about it.
Managing a large dog and walking it in high heat is a whole separate issue. Even if the dog is well trained this is probably not something that you should be doing either.
Unfortunately, you have set yourself up for a rough 3 weeks. You are not lazy. You are chronically ill. I hope that you can get through this but I honestly don't think that it is going to go well. Please learn to respect your limits and have an honest dialogue with your family about your health issues. If they are not supportive, support yourself. Good luck and take care.
You should really talk to your father about all of this. I have been dealing with this for over 20 years now and the best thing I learned is that life goes on if you say yes or no. If people don't understand you then you must do what is best for you. Best of luck and let us know how everything works out.
My heart goes out for all you who are so young! Even though, looking back, I had signs of fibromyalgia when I was your ages, they were sporadic and non-debilitating. I'm 59, almost 60, now, and all the symptoms have just now, within the past 6 months, joined forces to become paralyzing, anguishing flares and daily occurrences.
My prayers are for each one of you. May God give strength to each & every one of you and ease your symptoms. May He help the research teams find an answer.
-Sharon-