Chronic Lymphocytic Leukemia (CLL) Support Group

Chronic lymphocytic leukemia (or "chronic lymphoid leukemia") CLL, is a cancer in which too many lymphocytes (a type of white blood cells) are produced. CLL is the most-diagnosed form of leukemia in adults. Men are twice as likely to develop CLL as women, however the key risk factor is age: over 75% of new cases are diagnosed in patients over age 50.

0 Online
  • Palisades

    Stage 0 CLL symptoms

    Hi, I am a 63 year old female, who was diagnosed with CLL, stage 0, in January, 2016. Ironically my mother, was also diagnosed with CLL at the same age. She is no longer with us. I am fatigued and sometimes have night sweats, otherwise I am in fairly good shape. My lymph nodes are not enlarged. I thought at stage 0 that I would not have any symptoms so am surprised by the fatigue, not really...
  • Acc

    Just Started Ibrutinib Today

    Macc here, a 58 year old very healty and active male in Colorado, have been "watching and waiting" CLL for 15 months, white blood cell count up above 200,000 so started the Ibrutinib today.  Looking forward to learning from participants in this forum. 
  • vmsamom

    Just diagnosed

    I am a 38 year old female that was recently diagnosed with CLL.  I have two small children so I am still processing everything.  We go next week to go through the next steps and potential treatment.  What can I expect?  
  • normas64

    Imbruvica (ibrutinib) Treatment for CLL

    I started treatment for CLL on October 26, 2015. Lymph nodes were so swollen in my neck that it was almost even with my ears. After only 3 weeks on ibrutinib, my neck was normal size as well as under my arms and I am sure all over my body.I am wondering if anyone else has been given this treatment, and if so, were there any side effects. The only one that I have had is high white count which...
  • melissa71


    I was diagnosed Cll at age 44 about 9 months ago, I was watch and wait, my WBC is 35,000! I have been feeling really bad about last 2 weeks severe headaches , body aches,walking issues and knee and leg and hip pain, could this have any thing to do will my Cll getting worse or progressing??
  • TeamMowerMan

    Symptoms and W & W over

    Hello, I joined this support group for support for my husband and myself, his caretaker. He is 41 years old and was diagnosed last October with Stage II CLL. He started with one large lymphoma under his armpit and then after scans found out they were throughout his body along his lymphatic system, everywhere. We have been to Dana Farber Cancer Institute in Boston, MA and our local oncologist...
  • Timmy

    62, male, CLL, auto immune anemia, chemo patient

    Am posting for my husband who was diagnosed last March 2016 with CLL and Auto Immune Hemolytic Anemia.  He went thru 18 rounds of chemo,  3 days each month, for 6 months.  Last chemo was Aug. 2016.  Has been good off and on.  Pneumonia Nov. 2016.  He's had a few good days.  Blood work looking excellent, but is fighting some sort of infection or virus.  Fever today and yesterday.  Feeling...
  • ty567

    CLL???? help

    I few months ago during routine blood work for a pre-job screening it was found that I had a low white blood cell count. This was no surprise since I have had low WBC since I was a baby. Still I was sent to my GP to get checked out and she then sent my to a hematologist (because she wasn't comfortable signing the form that stated I was fit to work). The hematologist ran a lot of blood work and...
  • ChildofGod

    Ibrutinib (Imbruvica)

    Hello I am actually new to the group. I am wondering if anyone has been or is currently on ibutinib (imruvica) ? 
  • appleone


    Hello, I am new to the group. My husband was diagnosed with CLL about a year ago. He is just about to start treatment. I hope everyone is doing well.
  • kasara

    CLL and cannabidiol

    I was recently diagnosed with CLL, Stage 0. A friend with breast cancer has been using cannabidiol (CBD) and feels it has helped her. I have been reading documentation about CBD killing cancer cells. Has anyone here used it for CLL?
  • TooYoung4This

    Newly Diagnosed...too young!

    Hi I am 35 years old and was recently diagnosed. All of the materials I have read speak of diagnose at 55+. Are there any others who fall outside of teh "norm"  in this group? Any tips? 
  • jeaniepeenie

    New to this group

    I am waiting for results of blood work to confirm that I have CLL. I just turned 61 last week, female, a runner, and go to the gym several times a week. That is why I am so shocked at what the hematologist is postive I have. I am never sick! I am having a hard time wrapping my head around this. I am seeing that there are other stage 0 people on here who have not needed treatment. I discovered...
  • zip2me

    New to board

    Hi. I was diagnosed with CLL in July after having a bad routine blood test done. I am on a wait and see, just went to Dr yesterday and he says all blood work looks good, as good as it can I guess. I just want to know if this ever gets easier and how you are suppose to deal with this. I also have hypothyriodism and had a brain aneurysm rupture in 2007. Really feeling like what's next. Everyone but...
  • New2CLL

    Newly diagnosed CLL

    As a 53 y/o female, I was recently diagnosed with CLL. My elevated lymphocytes, as with many of you, were detected during routine labs. I was referred to an oncologist/hematologist, who performed his own labs, which confirmed CLL, Stage 0. No lymph node involvement, spleen and liver ok. Currently in "watchful waiting" period. Easier said than done.It's scary news, only to be told to watch...