Brain / CNS Tumors Support Group

A brain tumor is any intracranial tumor created by abnormal and uncontrolled cell division, normally either found in the brain itself, in the cranial nerves, in the brain envelopes, skull, pituitary and pineal gland, or spread from cancers primarily located in other organs (metastatic tumors). Brain tumors may be benign or malignant.

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  • ZeldaMarks

    is it just me? or..

    Hiya, My name is Zelda and I am 18 years old and have recently been diagnosed with Glioblastoma Multiforme Stage 4.Is it just me, or when you tell someone about it they act differently around you? Like a completely different person? One of my best friends, Jonny, has always been a clown around me, we drove eachother insane but we loved eachother really. But after telling him recently about my...
  • tsktjo

    Looking for answers

    I was wondering if anyone was familiar with PTLD  (post transplant lymphiproliferative disorder).  My husband passed away August 11, 2016 and i still trying to understand what happened.  It is very rare and apparently there is nothing they can do. Please if you are familiar with this type of brain cancer, i would like to hear from you.Thank you
  • sunworship

    31 year old son with astrocytoma

    My youngest son has a recurring astrocytoma.  He has undergone 2 resections in two years.  It appears the tumor has reoccurred.  He doesn't want surgery again.  My eldest son is in prison due to methamphetamine addiction and subsequent trafficking.  I am being selfish but I don't think I can handle losing both of my!S
  • Suz1491

    My husband

    My amazing, wonderful, loving husband passed on September 23, 2016 from Glioblastoma Multiforme Stage 4, he fought for 22 months. I miss him more than words can say
  • LoopDLoop


    I have just been diagnosed with a fairly large (size of golf ball) Meningioma. I was sent for an MRI on 7th August '14 as I had recently been diagnosed with Meniere's Disease and was having lots of vertigo, dizziness, balance issues and tinnitus with some hearing loss so the ENT thought maybe I had an acoustic neuroma tumour. My Right ear was having fullness and feeling blocked several times over...
  • emily3

    Cavernoma (Cavernous Angioma)

    I have a benign, bleeding brain tumor called a cavernoma, in my left cerebellum, that was diagnosed in 2010. It is associated with a DVA (Developmental Venous Anomaly). Unfortunately it is inoperable. I had a bleed and stroke in 2008 but at that time they thought it was an AVM. I have many deficits associated with this. Just wondering if there is anyone in this group that has one or has heard...
  • IwillSURVIVE129

    Father diagnosed today

    My father, 58, was diagnosed today with a glioblastoma. They said he has a fifty fifty chance of living 2 years. I'm in complete shock but the thing I cannot process is how to keep going when I feel as if the world has stopped moving. I'm sitting in my house feeling like I should be dropping everything, school, work, etc. to spend every moment left with him. I'm terrified of feeling guilty in the...
  • deleted_user

    New here...

    Hello all!Diagnosed with inoperable Glioma in January 2008 and given a year to 15 months to live. Well, it is 2012...I am still here...lost my husband to leukemia in 2010...kind of blindsided everyone. So prepared for my eventual demise and so less prepared for his. Was a 15 year nurse when I was diagnosed. Not anymore, needless to say. Have lost the ability to drive. Lost our home, lost my...
  • tinaunger50


    does anybody here have this or know anything about this type of brain tumor?
  • brandyjackson

    looking for younger widow or widowers to connecr

    I recently lost my husband on January 5, 2015. I'm in a grief support group but it's hard to connect with other widows/widowers when they're older... They've all had kids and grandkids and had many good years together. For me, I was with my husband for 7 years and we were married for 1. He was sick for most of our relationship so kids were never an option. I just want to talk to people who better...
  • BrightSide987

    glomus jugular

    Anyone know what this is?I have appointments with doctors. I am very allergic to IVP dye. So they are trying to figure out how to run the contrast CT without killing me from the dam IVP dye.
  • KIFT75

    Possible cerebral atrophy ?

    Hi, for the past year my teenage son has been experiencing what we call "black out " of his vision. He isn't fainting, passing out but completely aware and it only happens for few seconds then vision returns to normal but feels pressure on eyes but only for seconds then he is fine. We had his eyes checked but everything looks good. Our primary doctor then ordered mri scan. The results have...
  • missmyhero

    Glioblastoma New Treatment...Injecting Polio

    My late husband died 6 years ago to a Glioblastoma. I saw a news special where they said that there is a new treatment where they injected the polio virus directly into people's tumor and some people have been totally cured. "That's cured.!"This made me cry because there needs to be hope for people with this deadly cancer. I hope they hurry up and do this to as many people as possible so more...
  • moineauu

    Could It Really Be?...

    After being told by coworkers, friends and family on several occasions that I was suffering from clear memory difficulty I finally decided to make an appointment with a doctor.Upon my exam the doctor told me to make an appointment with a Neurologist as soon as possible, and that if I could not get the appointment within a month to contact her so she can make sure I get in as soon as possible....
  • deleted_user


    My mother passed recently from a Glio. I am not sure what to do with all of my greif. Anyone else out there experienced this horrible type of brain cancer?