Amanda2016

Activity

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Amanda2016

  Posted: 11/10/2016

  Amanda2016 commented on the discussion Taking MG meds while breastfeeding.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Amanda2016

  Posted: 11/10/2016

  Amanda2016 commented on the discussion Swallowing Difficulty.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Amanda2016

  Posted: 11/10/2016

  Amanda2016 commented on the discussion Explaining MG to boss during flare up.

• Myasthenia Gravis
  

  Taking MG meds while breastfeeding

  Posted by: Amanda2016

  Last Reply: Amanda2016 11/10/2016

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  Does anyone have experience breastfeeding while having to take mestinon?It appears to be relatively safe and my daughters pediatrician said it should be fine but since there is so little known about the effects of breastfeeding while taking it, i was just wondering if anyone had any experience breastfeeding while taking mestinon.

• Myasthenia Gravis
  

  Explaining MG to boss during flare up

  Posted by: Amanda2016

  Last Reply: Amanda2016 11/10/2016

  3

  0

  Hello All,I need some advice on how to explain MG to my boss while having a flare up. I'm currently on maternity leave and due to go back to work soon, but I've been experiencing very intense flare ups since I had my baby. I just finished a course of prednisone, but flare up returned a few days later. Mestinon is my next course of action. Usually, a 3 week course of prednisone kicks it and I'm Ok for a few months.My boss doesn't even know I have MG as he is new and I wasn't having flare ups...

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Amanda2016

  Posted: 09/30/2016

  Amanda2016 commented on the discussion MG on Grey's Anatomy... who saw it?.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Amanda2016

  Posted: 09/30/2016

  Amanda2016 commented on the discussion MG on Grey's Anatomy... who saw it?.

• Myasthenia Gravis
  

  Discussion Like

  Posted by: Amanda2016

  Posted: 09/30/2016

  Amanda2016 liked the discussion MG on Grey's Anatomy... who saw it?.

• Myasthenia Gravis
  

  Major Flare Up - Postpartum

  Posted by: Amanda2016

  Last Reply: flutebell 10/01/2016

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  0

  Hello, I was wondering if anyone experienced a myasthenia gravis flare up after giving birth. I've had MG for 12 years and have been symptom free for the last 15 months. I had a baby 4 weeks ago and started to flare up 2 weeks ago. Symptoms really spiked last week and it feels like the worst flare up I have ever had. I am not that surprised since I have been getting very limited sleep with my little one. I dont have a Neurologist right now, so I had to see PCP who gave me a RX for Prednisone....

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  Joined New Group

  Posted by: Amanda2016

  Posted: 09/30/2016

  Amanda2016 joined the group Myasthenia Gravis.

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  New Friend

  Posted by: Amanda2016

  Posted: 09/30/2016

  Amanda2016 became friends with TeamDS.