Hello to all. I have recently been diagnosed with musk MG. I am on Mestinon and had been on Predsisone with an increasing dose every 2 weeks (I'm only on week 2 at 15mg). The first few days I could still swallow and take a few sips of tea or orange drink, by week 2, swallowing was worst. I am on G-tube feeding for weight restoration as I progressively lost weight from the dysphagia. My speech is also affected, worst than it was since prednisone. Does it get worse before getting any better? Has anyone been on Plasmapharesis? Please help me as I am so lost and confused. Thank you for any comments.
This may help some of us understand where we are currently...https://www.kitchenertoday.com/around-ontario/as-lockdown-eases-immunocompromised-people-prepare-for-long-term-isolation-2352286?fbclid=IwAR3_S7oP7RBu5z8VGfwSdvGRanE3yry9JwC3ol_7LMTJMUyFNCaC3WApRWsPosted with the realisation that I seem to be hogging things at the moment - not intentional at all!
I've just received this in relation to my other Autoimmune disease and whilst I don't have UC specifically, I do think the general thurst of this article is sound and equally applies to MG, or indeed any problem you might have with your doctor.Signs It’s Time to Seek a Second Opinion for Your UCShare on PinterestManaging your ulcerative colitis (UC) can be frustrating at times. It may seem...