Chevyman

Activity

• Myasthenia Gravis
  

  MG and antibodies

  Posted by: Chevyman

  Last Reply: Rhanson 02/28/2021

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  I need to gain understanding of AChR testing.  My meds are mestinon 60mg 2tabs 4x a day, Cellceph 500 mg, (used for 1 year) 2 tabs twice a day,and prednisone 7.5 mg each day.I feel tired all the time even when I first awake. Use CPAP every night. # are mostly good.Had a AChR test done.  Results high 3.46   I understand that I will never be .50, but shouldn't I be 1.50 or so with all this medication?    What # do others run ?    Thanks for reading and letting me vent.  

• Myasthenia Gravis
  

  A few MG questions

  Posted by: Chevyman

  Last Reply: cgreens 10/29/2020

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  I was initially diagnosed with MG in 2013. I've been treated with mestinon, prednisone, and have tried the IVG treatments.  Now I've  been on cellcept for over 4 months - 500 mg two tabs twice a day.   Was doing Prednisone decrease - 35mg down to 5 mg each day.  I feel tired all the time, even when taking the cellcept with 35 mg of prednisone.  My neurologist tells me if I wake up tired, it's not due to my MG. I also have sleep apnea.  I've been having prednisone decreased due to the...

• Myasthenia Gravis
  

  Arm and leg weakness

  Posted by: Chevyman

  Last Reply: Rhanson 12/27/2018

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  I have had MG for the past 6 years or so. I am a 69 M in need of suggestions.  My main problem is with weakness in my arms and more so in my legs. It is hard for me climbing stairs and to get out of a chair without using my arms. Is this “my MG” ?  On mestinon 60 mg three times a day. Does anyone else have this type of weakness also?  What have you and your MD done to help with this problem?   Art

• Myasthenia Gravis
  

  Tight thighs

  Posted by: Chevyman

  Last Reply: Rhanson 08/25/2016

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  Hi -new member here.    Both of my thighs are very tight on and off for the past 3 years. I can not close/put my knees together and I find my walking is harder during this time. My walk is stiff-legged and very slow and labored. Is this part of M G ? I was diagnosed with MG in 2013.

• 

  Joined New Group

  Posted by: Chevyman

  Posted: 08/24/2016

  Chevyman joined the group Myasthenia Gravis.

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  New Friend

  Posted by: Chevyman

  Posted: 08/24/2016

  Chevyman became friends with TeamDS.