Zebransa

Still haven't had my Sandostatin shot.  Did take  sq of Octreotide since I have had diarrhea for the past few days.  I just wish I were normal and could eat what I want.  I just wish they would...

I met an old high school friend for lunch yesterday and ate stuff that I should't have eaten.  So, needless to say, I was up with diarrhea all night.  Oh well, it was worth it.  I love extra...

Well, now the lab refuses to draw my blood.  They wanted the order clarified but the doc told them to call Kenner docs.  I just will never get these tests done that I should be having done at least...

It appears that the flushing is returning.  I've been noticing this after eating a big meal.  I haven't had this since my operation in 2006.  I need to make an appt with the NOLA docs I guess and...

Ugh!   This morning I had rigors..... the kids are all coming for lunch and I think this gave me stress.  I am so glad I have the Sandostatin shots.  I don't know what I would do if I didn't have...

I panic every month about my pills.  I have to take a note to the doctor to remind him to write my prescriptions (they can't be called in).  Every month his office screws something up.  I took the...

I just hate this Carcinoid.  I can't eat anything that I like without getting diarrhea.  It really sucks!  Thank goodness I have the Octreotide shots to take and the Levsin.  I don't know what...

I wish I were 17 again.  Also wish I didn't have this Carcinoid but that ain't gonna happen!  Learning to deal with it is not easy.  I carry shots around everywhere I go (have them already made up...

Well, now I have a NEW symptom to add to my already never ending symptoms.  Food doesn't taste like it use to.  I made lasagna and it taste the same as bread.  My cokes and sprites don't taste...

Some days are just worse than others.  I have been having so much pain for the past month.  I just wonder if I am getting more tumors, bigger tumors or what.  This really sucks.  I am only...

I wish this sweating would go away.  Of course it is summer so it's kind of normal to be sweating now but it makes my hair stink....soaking wet....yuck!  When I take a shot it goes away but.....The...

The pain on my left side continues.  I wonder if it is my spleen.  It's frustrating that scans/tests don't seem to find stuff that surgery does.  Unfortunately, I am too skinny to be a candidate...

For the past month I have had a new pain in the area of my spleen (under 10th rib, left side).  It sometimes takes 2 percocets at night to make it tolerable.  It seems to hurt more when I am laying...

This swallowing problem is getting worse.  Sometimes I can't finish taking my pills because of them getting stuck.  Food is doing the same thing.  I don't see getting a test because with my...

I have really been having trouble swallowing solids lately.  Actually, it was last April that I first mentioned this to my Doctor.    Even pills are now getting stuck in my throat.  It is weird....