Rigors
Ugh! This morning I had rigors..... the kids are all coming for lunch and I think this gave me stress. I am so glad I have the Sandostatin shots. I don't know what I would do if I didn't have Octreotide to give SQ as it stops my symptoms. It is so scary.
I want to go back to New Orleans to see the docs but I haven't been scanned or had blood tested in years. I really really need to do this but....as skinny as I am I just can't see them wanting to operate. The last time I saw them they thought I looked like I was right out of Ethiopia...... and I was heavier than I am now. They said I was nutritionally challenged and it would take a year to get back to normal. It's been almost 4 years and I am still skinny skinny skinny! I hate this. I would love to be normal and go back to work.
A new problem I am having now is with my eyes. I can't use them for more than an hour to read or do my iPhone games. They get very very blurred. Even with my 2.5 reading glasses, I can't see after an hour of "use". I hate this and wonder if it is nutritional or if it has nothing to do with carcinoid???????
I want to go back to New Orleans to see the docs but I haven't been scanned or had blood tested in years. I really really need to do this but....as skinny as I am I just can't see them wanting to operate. The last time I saw them they thought I looked like I was right out of Ethiopia...... and I was heavier than I am now. They said I was nutritionally challenged and it would take a year to get back to normal. It's been almost 4 years and I am still skinny skinny skinny! I hate this. I would love to be normal and go back to work.
A new problem I am having now is with my eyes. I can't use them for more than an hour to read or do my iPhone games. They get very very blurred. Even with my 2.5 reading glasses, I can't see after an hour of "use". I hate this and wonder if it is nutritional or if it has nothing to do with carcinoid???????
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