islandlady2016

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Steroids Prior to MRI

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Hi Everyone I am New to the group. Diagnosed 2011. Remicade put me in Remission. Have been off for a year and a half. Huge flare started last week. Dr. Put me on Steriods, I am feeling better. My question is, I am scheduled for an MRI...
So Frustrated! Starting over

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Hi all,I'm so frustrated I went to a Nuero who diagnosed me with MG.... Negative antibody, but after EMG he started me on Mestinion ...I got an appointment with another Nuero that was apart of the drs. at a good/connected with the University in my...
food with med

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Happy Sunday!I wake up every night really sick to my stomach....Then I wake when time to get up starving!!!....Just wondering what you eat with your mestinon?...If I only eat fruit or veg then I get very sick, need something more substantial, but I...
pain/meds

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Hello, I know supposedly there is not pain associated with MG.....which I don't understand.... If you over work your muscles they can hurt right? wouldn't that be the same principal?.... Anyway, most of my pain is int feet and legs when I've stood...
Dr. North Central FL area

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Hi, I've searched discussion, seen a couple of posts about Gainsville/Jax area but they were from 2013.... Wondering if anyway can recommend a good dr. I am in Gainsville area but wold travel anywhere in the state at this point! Thanks ;-)
Over did it

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Good Morning All,I guess I overdid it yesterday...only walked a small trail....but I have all my symptoms, and Mestinon doesn't seem to be working...Anyone with a similar experience? Anything to do? take 2 at once?I'm currently on 60x3 suppose to...
MisDiagnosed?

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Sorry for all the posts!Wondering if anyone has been misdiagnosed either way?...Something else and then finally diagnosed with MG...Or Diagnosed with MG and it was something else?
Labs

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Nerve Conductive says MGLab work says Negative Weird thing is I have all the symptoms( I think) droopy feeling face, ear pain while trying to eat, hard time swallowing, been hoarse for over a year ENT DR says muscles in throat not working, for the...
MG-come and go?

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Good Morning, new here ;-) Thankful to have found this group as this is all very overwhelming.Just diagnosed last Thursday, GMG, have been feeling really horrible, like every symptom, not strong in legs or arms, and have really had a difficult time...

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