tstrong824

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• Common Variable Immunodeficiency
  

  Hyzentra issues

  Posted by: tstrong824

  Last Reply: L-A 05/01/2018

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  Hello my fellow zebras. I just recently had to go to the emergency room for anaphylaxis(swollen everything and couldn't breathe) after my weekly Hyzentra dose. Now I have a high dose of 75 ml every week but I have been using hyzentra for about 6 months now and Igg products for around 3 years. I never reacted well with my Ivig, always had severe headaches and stomach issues. I believed the hyzentra would be my saving grace because it seemed to be amazing at first(well as amazing as 4 needles in...

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: tstrong824

  Posted: 10/25/2017

  tstrong824 commented on the discussion Getting help.

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: tstrong824

  Posted: 10/25/2017

  tstrong824 commented on the discussion Daily Igg injections.

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: tstrong824

  Posted: 09/28/2017

  tstrong824 commented on the discussion Having a no spoons type of day.

• Common Variable Immunodeficiency
  

  Discussion Comment

  Posted by: tstrong824

  Posted: 09/27/2017

  tstrong824 commented on the discussion Just diagnosed.

• Common Variable Immunodeficiency
  

  Having a no spoons type of day

  Posted by: tstrong824

  Last Reply: CVMA 10/04/2017

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  Hello everyone, My name is Taylor and I was diagnosed with CVID in March of 2015. I am currently in graduate school to become a school psychologist, I'm 24 years old. I have recently been using Hyzentra sub q for my immunoglobulin replacement and I must say it has its pros and cons. My doctor took me off of IVIG due to vein issues as well as side effects from the heavy dose. Sub q definitly doesn't make me feel as crumby as IVIG but the fact that I have to do it once a week is discouraging and...

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  Joined New Group

  Posted by: tstrong824

  Posted: 09/27/2017

  tstrong824 joined the group Common Variable Immunodeficiency.