Hello. I was diagnosed with CVID in April of 2016. I have low igg levels and low iga levels. My doctor did the pneumovax vaccine test and my body had no response to the vaccine at all. I have problems with IBS such as diarrhea and nausea. I also have bad reflux on a regular basis. Don't know if this is related though. I feel that I get sick more than the regular person but it hasn't put me in the hospital. I feel miserable from being sick to my stomach so much and getting sick with colds and other viruses so often. I understand it could be worse though! Can anyone give me advice on how to get any better? I'm not currently on any treatments for CVID. I also have fatigue and didn't know if this could be related to CVID ?
Hello to allI was diagnosed with CVID this summer. I went in for my annual appointment with the Rheumatologist that I've seen for about 4 years (for undifferentiated poly arthritis...or they just don't know!) and since the Plaquenil I have used for that time seemed to not be working any longer he decided to do some additional testing and found my IGG and IGM levels subnormal and my IGA level low...
I haven't checked in in a while , but seems this forum is quite inactive ? Is there another forum for cvid members ? I would love to see that people have somewhere to come or go to for support. It is so helpful talking to other people going through this . Is anyone aware of other Cvid or Iga deficiency support groups ? Thanks .