CajunGirl2015
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- Well Jo was into what we hoped would be her last 6 months of chemo but she has now broken out with shingles. She had just finished her last round of chemo so her white count is really low. They let her try one night at home on pain meds and...
- My sister Jo had her BMB last Friday and we are waiting on results. Please pray that it is good and the doctor says that she is done with treatment. She is doing good but has a lot of bone pain (but she did have to have Neulasta shots to get her...
- My sister went to MDA yesterday for her doctor visit. He said he is still not sure if this next treatment will be her last or not. He is watching a report that showed some residual cancer. He said it could be temporary damage due to chemo and...
- Has anyone heard any updates on LoraBerg? I haven't seen her on here in a while so I just wanted to check on her. I believe she had a SCT sometime this past March if I'm not mistaken.
- Jo had another BMB yesterday and a visit with doc at MDA. He told her that he would see what the results were for her BMB and if they are good, then she MAY only have the last three chemo treatments to go. If he doesn't like anything he sees on...
- Just wanted to see if everyone could remind their friends and loved ones who are able to give blood and platelets to give whenever possible.My sister needed platelets this past Thursday (hers were at 3) and they didn't think they were going to have...
- Would MDS show up on a normal blood test or would you have to be specifically checking for that for it to be noticed?I ask because while talking to my mother recently she told us something neither my sister nor I had known. My sister Jo was born...
- How can a BMB have an interpretation that says no minimal residual AML detected but on the cytogenetic report it says:pseudodiploid clone is still present in the bonemarrow indicating persistent disease. My sister's BMB did not have the above note...
- My sister has developed a lot of pain in one of her arms. She cannot lift it any higher than just above her waist without a great deal of pain. They did an ultrasound and determined that it was nothing to do with the muscle but there is a knot...
- Happy News! My sister was able to be there for the birth of her 7th grandchild Friday. Oliver was 8 lbs, 4 oz and a beautiful baby. My sister cried happy tears because she had worried that she might not be here for this daughter's first child. ...
- My sister had a chest port put in Thursday since she will have chemo for another year. They will remove her Hickman port as soon as she heals from the chest port surgery. Anyone have any experience with these? Her is swollen and very painful even...
- Anyone had experience with the following symptoms:My sister has come up with several large round red areas that look like a sore kind of but she has gone to the doc and they have cultured them. It has only been 12 hours and the full report needs 72...
- I was looking at my sister's reports from her last BMB on 2/18, they did an extra test for the FLT3 mutation which they have never done before except after the initial BMB upon dx. They didn't tell her why they did it this time and not any of the...
- Well, Jo had her 3 mo BMB yesterday and they have decided to continue chemo for another year. She was really disappointed. Dr. Bothakur told her that her BMB in June still showed some inverted 16 cells but that the one in October did not. ...
- My sister's platelets actually reached 117 prior to the round of chemo she just had this past week and after 5 days of chemo, her labs yesterday showed them still at 105. I know they will drop but that's the highest they have been since she started...