pippiphurray
Status: This is a Pseudo Nightmare!
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- Yesterday I actually had a good day, pain was only a 3 and my mom and I really enjoyed it!! Last night the monster woke up and bugged me a little with a headache.This morning I had a slight headache and within 45 minutes I was in full blown attack...
- I had five good days in a row. The last two days I actually felt like a normal person. That hasn't happened in 10 months. Every time I have more than one good day in a row I always hope I'm going into remission which is my fault for getting my...
- My migraines are pretty much daily due to Intracranial Hypertension. My primary care doctor prescribed Imitrex a week ago as I was desperate. I was so happy that it worked. He prescribed the max dose 100 mg and if it doesn't work of course 100 mg...
- I know that the whole weight and PTC is controversial. I'm lucky that my neuro ophthalmologist is overweight and hasn't given me a hard time. I did lose 30 pounds very quickly when placed on zonisimide for PTC.I don't know if this just coincidence...
- I'm new to this support group. I'm a member of Pseudo Tumor Cerebri which causes high pressure headaches, blurry vision, pain in neck and shoulders. I originally thought I was just having migraines but turns out I have PTC. I'm sharing this...
- I had referred to my headache in another post as having a Migraine for the last five days and was told it is not a Migraine. What do we refer to it as?? A high pressure headache? A PTC headache? If you are trying to explain it to a family...
- I went and had a well woman exam Monday and I'm healthy except for PCT and apparently I am "off the charts" hormonally. The high range was 33 and I'm at 42 on their scale. I just turned 45 so didn't think I would go into menopause already. I do...
- Happy New Year my fellow Pseudo Tumor Cerebri \ IIH friends. I wanted to take a minute to thank all of you for the information and support you have given me since September. Honestly there is little information out there and I'm not sure what I...
- I've tried posting three times today so hopefully this doesn't show up three times.I had a really rough two weeks and saw doctor last Monday. He says very few words and you can barely get one question in so I just decided to ask if this is a...
- Hi Everyone or I should say The Few of Us :)Just venting, but I had like six bad days in a row last week and suddenly I'm fine. I can't figure out what is triggering this. Sometimes I get it for a few hours. Sometimes I am good for over a week at...
- I had symptoms for four months before diagnosis in mid September. The pain was everyday and never let up. After LP I felt great for almost two weeks then constant symptoms until I got put on medication (zonisamide). I slowly started feeling better...
- I was having about 10 good days in a row and today started rough. As the rain got closer and closer it seems I got worse and worse. It's going to rain all weekend here. Does this make sense? Is this normal? I can't find anything on the internet...
- I had a bad bladder infection about five months ago and the doc prescribed be Tetracycline which worked on the bladder infection, but I just put the pieces together and shortly after that is when I started getting IIH symptoms. Of course I didn't...
- Yesterday I was about a 7 on the pain rector scale. Suddenly for no reason at 745 last night the pressure just went away. I have no idea why. I went to bed at about a 1.5 and woke up the same. I'm at work right now and at about a 2.5 and just...
- I have decided (once again) to quit smoking. For one, it's just disgusting, two I feel better when I don't smoke and finally I have another condition and hopefully if I can quit it will help with headaches.This will be my fourth time go around and...