Pseudotumor Cerebri Support Group
Pseudotumor cerebri (PTC) is a neurological disorder that is characterized by increased intracranial pressure, in the absence of a tumor or other diseases affecting the brain or its lining. Diagnosis requires brain scans and lumbar puncture. Characteristic symptoms are headache, transient visual obscurations or transient visual loss in one or both eyes usually lasting...
Yesterday I was about a 7 on the pain rector scale. Suddenly for no reason at 745 last night the pressure just went away. I have no idea why. I went to bed at about a 1.5 and woke up the same. I'm at work right now and at about a 2.5 and just waiting for it to come back. Is this normal?
Also, at what point do you try to take pain meds? Right when you feel symptoms or when your a 5 or do you wait until you just can't stand it anymore? Just curious.
Thanks and I hope everyone is having a tolerable pain day!
Also, at what point do you try to take pain meds? Right when you feel symptoms or when your a 5 or do you wait until you just can't stand it anymore? Just curious.
Thanks and I hope everyone is having a tolerable pain day!
shari2015
It would probably be better to start earlier when pain starts, but be aware that the problem with pain medications is that you develop tolerance to their effectiveness with regular scheduled use after a while. I use ibuprofen right now. Sometimes I take a Benadryl at bedtime if I think a rough night is coming. My headache levels are minimal now, but I have used stronger stuff before.
mellowamethyst
I found that marijuana alleviated my pain due to IIH better than most other medications. Whenever the onset of pain symptoms began, I would use my vaporizer. Nausea was one of my worst symptoms and it also helped with that. I was able to function, eat well and rest. It also kept me very calm and happy, which I needed because of how depressing having IIH can be.
pippiphurray
Thank you! I have actually thought of that. I wish it was legal here and I could vape it. I was hurting so bad one day my husband knows someone and he actually suggested it and he is anti-drug! LOL I am losing weight rapidly now even though the medication change has helped my symptoms about 75% so I'm happy about that.
eight6
i think i started with diamox and it made me sleep for some reason i miss my shunt i just had in feb and it got infected though in march from a tooth abccess so then because of that ive had menegitis from the surgerys but my doc did start me with fentynal patch and then to 30mg of morphine twice a aday now because of my brain abccess i had in the end of august i still have a picc line and my doc has me on 20mg of oxycontin twice a day and 4mg of dilaudid if my pain is bad that day then i have the dilaudid to take if the oxy isnt helping
eight6
plus it is wierd being a man with pseudo tumor when they told me its mainly found in woman
ladyabug
For me it depends. I always have nausea and heart burn. It has to really sting for me to decide to take anything because throwing up messes me up horribly. I can't take anything because it makes my nausea worse. It like do I feel pain or nausea? Sometimes I stay with both! Diamox makes me really ill. Sometimes I can't figure which is worse. It just depends I guess if my ice pack doesn't help first.
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