Stevewmarsh

Status: Feeling ok

Mood: Good

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New site set up

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Am I the only one who is finding this site very hard to use and navigate now thaat it has been changed?I am struggling to find the list of current posts.
static shocks? is it common

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Hi AllI was diagnosed in 2014 with HH and had my family tested, it turned out that my daughter also has HH, and my wife and son are both carriers.The interesting thing we have noticed is that not only do my daughter and I get colds that my son and...
Update on Hip and Joint Pains

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Hi allIts been some time since I posted anything on teh site.I had heard that it can take up to 2 years after being de-ironed for the full benefits to be felt.My hip pains initially went away after I started with the phlebotomies, only to return...
Travel Insurance

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Hi allNow Christmas and the new year are out of the way its time to think of holiday's.Has any one with HH mentioned this to their ravel insurance company, and if so what was the result.We are going to Cuba in April, and I am not sure if mentioning...
Dont forget to have family members checked

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Hi AllJust a quick note, following my dagnosis earlier this year, I convinced my brother to get checked, and he has been confirmed with HH, We then had my wife, son and daughter checked,.My son who ws 26 when tested had a high ferritin level but...
link to site for diagnosis and management of HH

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All Found this site on the web, it has some interesting points and sections:-http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3149125/Its worth a readRegardsSteve
Strange Effects of Venesections

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Hi alljust thought about what has been happening to my symptoms since I started with the venesections 6 weeks ago.Left Hip pain.I have been having weekly sessions and have now given 6 pints of blood.After week one my hip pain which was becoming...
First venesection today

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Hi all, well after two years to diagnose me I am now going for my first venesection today, I used to be a blood donor so I dont expect any problems this week ... next week may be a different story.Can any one tell me what effet having weekly...

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