I did not have this issue, but there have been reports of many athletes having not been diagnosed for heart issues that are young. The good news is he just had a test he would not have normally had. They will likely do another test and the cardiologist will clear him.
Praying for you guys,
Andrea

Lori -

I am so sorry for the additional worry that this issue is causing you. I pray that the cardiac doctor will decide that this concern isn't a significant enough one to interfere with plans for SCT, and that you get the all-clear asap. We will be traveling down this path with you, it looks like, as we learned just yesterday that my dad has relapsed. The hope is that another induction round will bring him to remission, and that he will proceed immediately from there to SCT. He will be admitted tomorrow.

I have tremendous hope for Keir - there is no reason to think that such a young and otherwise healthy young man won't do very well with the SCT protocol.

All the best to you, Lori.

Robin

Robin,
I was so very sorry to read that your dad has relapsed. Please know that my prayers are with you and your family. You were always so supportive of me since early March as we learned that your dad and my husband had so much in common. Please continue to keep us posted.

Myra

Robin,
One more thought - I hope that it gives you some measure of comfort to know that my husband did well going through the transplant since both he and your dad are the same age.

Myra

Robin, prayers that your dad gets into remission fast. I do a LOT of praying lately.

Keir finished his other tests. Now we are waiting to see the cardio guy on Thursday and all hinges on that. Everything was set - he was to be infused on his real birthday, 12/18.

Asking for prayers that this can go ahead. Keir has no symptoms other than this and his EKG was perfect. All other tests (so far - some results not back today) are good.

Lori,
Praying that it is all go ahead as planned for 12/18! I am glad to hear he is feeling well, now just to get past this one more hurdle, can we just clear the path? I wish I could just go out and know those hurdles out of the way!

Robin,
So sorry to hear about your father's relapse, he was doing so well. It is hard to hear, I really was hoping that the first treatment would keep him in remission. Praying for treatment to go well and then back to complete remission.

Take Care,
Suzanne

Lori,

We are all here for you, and I want you to take a deep breath. None of our courses have been without "speed bumps." They go with the territory. You know that you and Keir are always on my mind and I am sending out positive brain waves in your direction. Lean on me.

Robin,

I too am sorry to hear about your dad. Remember, I will be 61 in less than three weeks and was transplanted 3 months before my 59th birthday. I am healthy today, and so will be your dad. He will do well, because he has you.

Cliff

Robin and Lori -- yes, you share some setbacks, but we are all praying for you and know that your loved ones are in this fight for the long term. Please keep us up on how things are going. We care very much -- dave

I agree with everyone. I had many EF tests for my plexxicon trial and one of them was low, but only one and I was passed for the plexx and then post rial I passed again for the transplant. I dont remember my number but it was low. Sit tight. Hold tight. I pray the next test will be fine!

Robin Relapse Schmelapse. OK NOW you go for the cure. I felt like when I relapsed I had a bronze medal and now I feel like I am battling the post transplant to get the gold!! I am so in your corners, both of you. All of you.

Ed

Thank you all. My big fear is that they will just toss him off the bus - "sorry, can't help you now."

I tried to get more info but all anyone would say is that we would just have to wait for the cardiologist. I understand that - but surely not everyone who goes into transplant is in perfect shape? Keir has no other health issues. We are just feeling so flattened.

Lori,
I have every confidence that Keir will get the "green light" from the cardiologist. He's young, strong and will weather this storm as he has all of the previous ones. I found the months prior to my husband's transplant the hardest because there were so many unknowns - would he be physcally fit for the procedure, would there be a donor, etc., etc. I found that it was best not to look too far into the future and to focus on the issue at hand. I also replayed in my mind all of the good advice that I received on this site - especially from Cliff who said that this is "doable". I wish you well.

Myra

Thank you all. Tomorrow is the cardiology appointment. I have had a rough day. Keir is feeling really well - counts must be coming up and he's exercised a lot today and is eating well and has energy.

Our appointment is at 11. I don't have any clue what might happen. I still fear him being thrown off the transplant bus. He'd signed all the consent papers - finished all the tests yesterday - donor totally on board. So this is hanging over me like a damocles sword; that's what it's feeling like, to be truthful. I appreciate greatly all the encouragement. I would not be making it through this day otherwise. Keir's transplant had been scheduled for Dec. 18 - his real birthday. Things seemed almost perfect - finally.

Hi Lori,
I call it the "hurry up and wait game", I think it is the hardest part, the waiting. It feels like you rush to diagnosis, you rush into chemo, but then the waiting between treatments , blood counts, and bone marrow biopsy is an exercise in extreme patience! Praying for good news and a go ahead tomorrow.

Take Care,
Suzanne

Lori,

I cannot imagine your anguish as you wait to hear tomorrow's verdict. I'm sure it is what we have all encountered, the lose of any semblance of control. It is so hard as the patient but I'm sure even harder as a mother. GOD bless you and keep you through this last leg. I know keir it's going to keep his birthday date with his new bone marrow. I'm praying for you both.

Peace and blessings,
Julie

Lori:

Thanks for keeping us up. Chemo can do tricky things to the heart and I expect we all had to take a couple tripe to the cardiologist. But these will be temporary, especially in someone as young as Keir. We are all praying that you will get the go ahead by tomorrow noon -- I know it is really tough waiting. Try to get your mind off of it as best you can -- take care -- dave