zippy62

Activity

• Acromegaly
  

  Discussion Comment

  Posted by: zippy62

  Posted: 06/22/2018

  zippy62 commented on the discussion 50 years of acromegaly.

• Acromegaly
  

  Long term effects of acro

  Posted by: zippy62

  Last Reply: Twomore 03/05/2018

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  Wondering if others would share their experiences with the long term effects that acro has brought into their lives - whether you have attained clinical remission or not.  The physical challenges, mental and emotional hurdles, and effect on relationships that you have encountered are all welcome.  I am trying hard to understand if my inability to cope is weakness of spirit and body and if there is any hope to find peace with this hideous condition.

• Acromegaly
  

  Discussion Comment

  Posted by: zippy62

  Posted: 10/09/2017

  zippy62 commented on the discussion 30 year old female - suicidal..

• Acromegaly
  

  Difficult few months...

  Posted by: zippy62

  Last Reply: Twomore 09/03/2017

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  I just need to vent - my struggle with acro has been so overwhelming in the past 6 months that I am ready to give up.  I have never been so tired or struggled so hard to cope with poor memory and compromised thinking.  I've tried to push through the body aches, the headaches,  the endless medical tests and appointments and hope that some degree of normalcy will return.  The doctors try to be encouraging, but I really wonder if they understand the physical and mental anguish we face each...

• Acromegaly
  

  Discussion Comment

  Posted by: zippy62

  Posted: 03/13/2017

  zippy62 commented on the discussion Here I go again...

• Acromegaly
  

  Discussion Comment

  Posted by: zippy62

  Posted: 03/13/2017

  zippy62 commented on the discussion Here I go again...

• Acromegaly
  

  Controlled but still dealing with headaches .....

  Posted by: zippy62

  Last Reply: spiegal 02/10/2017

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  After diagnosis of acromegaly I underwent transsphenoidal surgery.  My IGF1 levels nomalized for a while, but started to climb and I was started on medication (lanreotide and cabergoline).  At that time I began having headaches which were initially thought to be related to medication.  My doctors reviewed the options, and based on the location of the remnants of the tumor a second surgery was not recommended, so I opted for radiation treatment.  The headaches continued, increasing in...

• Acromegaly
  

  Discussion Comment

  Posted by: zippy62

  Posted: 10/20/2016

  zippy62 commented on the discussion Constant fatigue, low stamina, after 2 yrs?.

• Acromegaly
  

  Discussion Comment

  Posted by: zippy62

  Posted: 10/20/2016

  zippy62 commented on the discussion Constant fatigue, low stamina, after 2 yrs?.

• Acromegaly
  

  Discussion Like

  Posted by: zippy62

  Posted: 08/15/2016

  zippy62 liked the discussion Time b4 everything is going to change has?.

• Acromegaly
  

  Discussion Like

  Posted by: zippy62

  Posted: 08/15/2016

  zippy62 liked the discussion Signifor for Acromegaly Patients.

• Acromegaly
  

  Discussion Like

  Posted by: zippy62

  Posted: 08/11/2016

  zippy62 liked the discussion Temporary medication options?.