Are constant fatigue, hair loss, significantly low stamina, mood swings, and memory issues common even 2 years after surgery?
I am 25 now. I was diagnosed with a seemingly macro adenoma 2 years ago when I started having headaches and series of fevers. I went through a surgery, had it removed. Gradually my facial features changes slightly, although I didn't much notice a thinning of palm and feet tissue as the doctor told. A year went by, all the hormone levels came to normal, IGF too.
But, I faced a severe hair loss(thinning, very visible bald patterns - no one in family had, except maternal grandfather, who has some pattern baldness which came with age), very low stamina - one flight of stairs is enough to get tired(I used to take stairs all the time and never got tired before), mood swings(sometimes, it feels so low everybody around me starts asking 'what's wrong' , although I'd have no specific reason), and kinda memory loss(I keep forgetting simple things, words etc). I tried some physical activity like gym, badminton, but that was triggering my migraines sometimes, due to lack of stamina I suppose(stress is one of the triggers for my migraines). I couldn't tell all of these to my endocrinologist or neurosurgeon, as I'm still not sure if these are just my fearful thoughts, or actual problems. I told about some of these like stamina issue, fatigue and hair loss to the doctors, but they suggested exercises, dermatologists, but even almost 2 years after my surgery I am stuck with these problems. I started ignoring them for a while, thinking it's all in my head and it gets better, but friends and family also started noticing my forgetfulness, lack of stamina etc.
Even in the tests I have taken recently, all my hormone levels - GH, TH, testosterone, cortisol, IGF etc, were all in normal range. I have never been angrier or sadder before, it gets annoying sometimes. It's so confusing. Sometimes, my family thinks I'm just too lazy and moody, they almost forgot I even had a problem, which is relieving to live with, but I know that I have much going on that I am not really able to control even when I try hard.
My lifestyle had changed with this, and I'm still 35-looking 25 year old man.
Did anyone face something as vague as this and found any way through or out of it? Or should I consult a thereapist or some special doctor?
I am convinced I have acromegaly but don't know where to start. I am desperate for somebody to look at my photos and help me. I feel really on the edge at the moment.
Hello there! I just joined this support group & am excited to find others like me. I had surgery on Feb 7th of this year (2017). I didn't really notice my jaw protruding too much before surgery but it definitely was there. After surgery it still is and may even be a little worse? My smile seems like a "joker" smile. I have a underbite (had this before surgery) and can't even open a ketchup packet...