JCStormy
Status: Never be afraid to act ridiculous ~Doctor Who
Mood:
Ok
Offline
- I'm waiting patiently for the uproar from people who actually /have/ MS that's sure to follow this sudden study. I hope this isn't one of the researchers we give our monies to to help find an actual cure. Me and my monthly subscription to Keurig...
- I know I've been quiet for a while, but I've been watching and reading, and sending warm thoughts to all of you on forum; even the quiet ones like me.I'm afraid, though... I've been trying to get into an HSCT test trial. Of course, with that,...
- Hello, everyone!I haven't been around much to do more than answer the occasional question (when I didn't come across sounding like gibberish in my own head) or give the occasional supportive response or hug. I've actually, and apparently, been...
- ...and suddenly the paleo diet is going to be the next greatest cure?Um... NO! Maybe for him. Maybe for the supposed doc for whom it, apparently, worked but what the news people need to realize is, as we at DS keep reminding us... and we see for...
- The 27th will be a year that I've been with DS. Day before yesterday, April 10th, a year since diagnosis. In that year, what have I learned? That this isn't a dream. That I'm not going to wake up and find it all a figment of too much to eat at...
- It's getting closer to some sort of actuality?Woman to undergo stem cell procedure to treat multiple sclerosis:http://www.myfoxorlando.com/story/25095617/woman-to-undergo-stem-cell-procedure-to-treat#ixzz2xDy1d29i
- Not the actual people but the not being home with reliable internet access! Priorities! LOLSo, as I sit here bored, I share these with you. Not a cure, even now I would not be so presumptuous as to stick a "cure" label on anything, but something...
- First came the realization that something was up. Then came the visit to the neuro and the (polite) refusal to go to the ER, and the promise that I'd get someone to come to the house to do steroid infusions... that was 2 weeks ago and still no sign...
- The author wrote this open letter to, hopefully, help us help some of our friends/family/neighbors/etc better understand:"Having Multiple Sclerosis means many things change, and a lot of them are invisible. Unlike having cancer or being hurt in an...
- Since being diagnosed with MS in April 2013, I have had to be admitted into hospital at least 3 times since. It would have been more but there were just some times that I refused to go; they would just put me on another steroid infusion until it...
- Since I was dx in April of 2013, the one thing I kept hearing from, oh, everyone was that this was an autoimmune disease and that I should do my utmost to avoid catching colds, and such. Make sure I took my vitamins, make sure I got my flu shot...
- Have you eve just stopped talking? Not as in no voice, but as in just stopped letting people know when things don't feel right?I think I've gotten to the point, now, where I just don't feel like telling anyone when things aren't feeling right...
- Every year, my husband's company has what could be called a grand summer company picnic. There is food, en masse, sometimes clowns and acrobats, ofttimes rides like the pirate ship and ferris wheel; and all kinds of alcohols and frozen treats.This...
- Heya, all.I was diagnosed with RR MS after an ER visit last April... then was admitted again 2 weeks later and finally was able to see a specialist (not my neurologist) this week only to find out that I have yet to go into remission with a whole...
- Hello,At another site I'd found there is a symptoms checklist with radial buttons as part of their journaling. I'm not really on that site much (because everyone here is much more involved) but I was wondering if anyone knew of an iPad or iPhone...