1210donna

About Me

I\'m an artist, writer, singer/composer, sculptor. I\'m married with two wonderful cats and a great garden. I spent 20 years working as an autism consultant and presenter. I grew up with an alcoholic, attachment disordered mother with Munchasen By Proxy (MSBP) and survived significant abuse including repeated suffocation abuse. I was diagnosed at age 2 with autism, grew up with visual and verbal agnosias (meaning deaf, meaning blind, face blind) and acquired functional speech by late childhood. Like many survivors of MSBP I have and was diagnosed with Dissociative Identity Disorder and PTSD and after many years of work have significantly recovered. I live with primary immune deficiencies. and Ehlers Danlos Syndrome IV, am a breast cancer survivor who chose no reconstruction and lives \'breastfree\'. I had optic neuritis in 2004, developed a failed respiratory drive by 2010 (on VPAP Auto), then autonomic dysfunction during chemo in 2011, hypersomnia in 2012, was diagnosed with peripheral neuropathy in 2014, developed diplopia in 2015 and foot drop in 2106. I have a cousin with EDS and MS (EDS comes with 10 x the usual rate of MS) and a brother with features of each. I was told by the neurologist in 2014 that I may progressively fit an MS presentation, and it has now come to that. I was put onto Baclofen for muscle spasticity and spasms and Gabapentin for hypersomnia caused by sleep fragmentation and have responded extremely well to these. I see the neurologist this July 2016