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Speechie
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Thymectomy
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Thymectomy can be done open chest (like open heart) or minimally invasive robotic depending on doc's assessment and availability. Many doc's do open chest type as thymic tissue diffuses with age and it's important to get all of it. I don't know much...
Mestinon side effects
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Some new members have asked about side effects of mestinon so I'm posting this for them. I have generalized myasthenia with fluctuating weakness in legs, breathing, eyes and voice/speech. When I started taking mestinon, I had all the side effects...
New posts
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I've noticed that initial posts often stray from topic after the first couple responses. New member JonS was asking about side effects and new symptoms and the last two posts (including mine) were about vaccines. Would if be possible to start new...
MG and Coronavirus: Professional information
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Saw this great webinar on MG and Coronavirus by experts posted by Myasthenia Gravis Foundation of America. It's lead by Dr. Kaminsky, a well-known expert. https://youtu.be/-KoqJbwQ5I4Here also is a pdf of their current...
Chloroquine / Hydroxychloroquine
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Please be advised that one of the drugs recently promoted as a possible treatment for Coronavirus may exacerbate or induce "myasthenia-like syndromes." This is included in the list of side...
CBD and myasthenia
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I tried CBD oil from a reputable source featured on the Today Show. Strangely (I guess due to advertising), I was really worried it was a powerful thing and started at a very low dose and slowly doubled it until I was at recommended dose. No...
