Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

1,709 Members

7,414 Posts

0 Online

Speechie 08/02/2021

I've noticed that initial posts often stray from topic after the first couple responses. New member JonS was asking about side effects and new symptoms and the last two posts (including mine) were about vaccines. Would if be possible to start new posts on change of topic. I'm not sure if it's a concern for others but I find it a bit confusing. Just asking, not ranting!

Rhanson 08/07/2021

I think new folks are not sure how to start a new post and so we see them first in a comment that asks an unrelated question. That means sometimes they won't get an answer as the question is missed.

Russ

fihghter 08/08/2021

Speeche
I agree with Russ, and i would state that lots of time and new to our desease people may find themselfs very hesitant, this is a natutal provess as we go thru a detrimental experience, and dont know what questions to ask,
we know that you are not ranting

answers for the quesstions may be missed or misundertood, but we all allways come thru, doctors will never give you responses as they are allways in the rush, and 15minutes of time as set by the insurance companies are not enough, so please dont be afraid yourselfs to ask this group for answers, we can provide lots of needed info as well to recoment reading some needed sites

best of luck

Andre

Join the Conversation