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warmcommunique

Status: Waiting to start clinical trial... Washout period is awful.

Mood: Ok

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Clinical study in the Northwest / Seattle area

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Hi all! There is a new drug on its way to becoming approved by the FDA which I have signed up to participate in a clinical study for.I am literally the only one out here participating/ eligible for the study. The medication, blood draws, diagnostic...
Bariatric surgery and acromegaly

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Hi all!After lots of research and going along this journey with this disease I have decided to do a sleeve form of bariatric surgery. I will have it covered 100% which is a miracle. My Endo is totally on board. Has anyone else done this and how has...
Acromegaly & Methyphenidate

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Hi all! It's been quite some time since I've posted. Currently I have active acro, and have several other auto immune issues that I'm resolving :) I recently found out that the Acromegaly was back, so started Somavert a week ago. Have few side...
Allergic to all Acro meds.

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I recently had a reaction of anaphalaxis after having to take a 5 day break, and when I resumed my first injection after 6 months on it. Had the same reaction to Lanreotide the second month i had the injection so that rules out all octrecide and...
Update +Reaction to Lanreotide / Somulatin LAR

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Hey everyone.So, I've been silent for awhile... I suppose denial is really to blame. Denial in every area of my life. I've applied for disability, and feel as though I'm losing my husband... He is so strong, and so supportive, but I believe that...
How does Acromegaly return with a clean MRI?

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Hi all. As some of you know, I had an incredibly successful surgery at Mayo 1 year ago. My GH and IGF-1 dropped to normal immediately. In November we did a repeat MRI to look for remnants, but it was all clear. In March all blood looked good still....
PItuitary Macroadenoma and TN?

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Hi all!I was diagnosed with a macroadenoma on my pituitary gland, which wrapped around my carotid artery and was pushing on my optic chiasm. I was getting awful headaches, and had surgery within a couple days of diagnosis. This was 7.5 months ago. I...
Pain Management/Pain Clinics

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Hi all.The pain I experience on a daily basis is crippling. I do so many different things aside from pain pills to help with it. Pain coming from my ovaries almost all the time, back pain, kidney pain, headaches, tmj pain like crazy, muscle pain,...
Cortrosyn stim test

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hi! i was diagnosed with a pituitary macroadenoma and diagnosed with Acromegaly in August of last year. i had surgery immediately following my diagnosis and by the grace of God, it went swimmingly! after surgery my cortisol took a nosedive and i was...
Carcinoid Tumors?

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Just had my 6 mos post op exam and bloodwork, and I have no blood left! haha, just kidding. Things have been progressively getting worse for me in the last few months and I'm not sure whats going on. I was also given two big orange jugs that say...
New to group - Need answers :)

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Hi all!My story is quite long, as I'm sure most of yours are, so I'll just give you the gist. I've been reading all of your posts for several months now, without posting. I'm hoping in posting here, I may be able to seek answers as well as help...

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