Acromegaly Support Group
Acromegaly (from Greek akros "high" and megas "large" - extremities enlargement) is a hormonal disorder that results when the pituitary gland produces excess growth hormone (hGH). Acromegaly most commonly affects middle-aged adults and can result in serious illness and premature death. Join the group to discuss symptoms, diagnosis, and treatments.
Having your medical group of doctors send a bunch of thier most recent reports, studies on you, not to mention, oh you've had brain surgery, and have ovarian cysts? That your bones and joints are in constant agony... Then at least taking this faxed information/file have you to her, or faxed to her signed by other doctors... You already have something to stand on.
Take a deep breath, and remember. I had that issue before when I was going in to the Pharmacy for my Androgel and Lorazipam... I went in maybe two or three times "early" for refills in their books. When I refill, I refill my whole file... And I didnt think anything of it, but they gave me a HARD time and looked at me very funny and were snippy. "Well your not finsihed them ALL are you? Your NOT due..." And they whip out the Calandar. And Im like "You didn't get my recent Doctors Prescription from my Therapist, she had my Lorazipam updated.. Increased." WELL! They Just had to call and ensure this was "True".... Even though I had my prescription and authorization numbers on it for a controlled substance.
It happens to us. I think you will be ok. Just have your recent information up to date, and have Doctors around you 'in the know' in case she wants to consult with them before moving on some pain management changes. It's a health team, and you have to be heard.
Little by little, you can keep plugging away & never give up. I had help with the trigeminal nerves & TMJD issues & they're not the HUGE nuisance they were before. There's always something, but things are getting better over time.
BTW there is a chronic pain support group at DS & there's one at fb that keeps up with legislation.
Maybe you could consider contacting a legislator about this issue with being forced to see only the doctor with you whom you have bad rapport & who will not treat you properly.
Take care,
Rose
My current meds are pretty rubbish. Only take edge off and mess with bowel!! Wanting to try TENS.
Take care
H