Iris2012

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A Success Story

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It's taken me 15 years, 6 doctors, innumerable attempts at medication, and 1 surgery, but I'm finally ready to claim an important victory in my prolactinoma battle. My 2-week old baby is sleeping next to me as I write this, and I marvel how just a...
Post surgery test results

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I had my post-surgery MRI several weeks back. No sign of tumor--yay! The surgeon had said that he had to leave a tiny piece behind, so my endo said it's possible that it's so tiny and hidden that it can't be seen on the MRI, or else the rest of...
One week post surgery

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This time a week ago, I was in the recovery room at the hospital. It feels great to hit the 1-week milestone! My hospital stay feels like ages ago; on the other hand, I can't believe it's already been a week.Feeling better every day. Well,...
Day 4 Post Surgery

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I had my prolactinoma removed on Tuesday. It was such a hard decision to have surgery, and I was so nervous, but everything has been going smoothly so far. Some complications can arise several days/weeks after surgery, so I'm not officially out of...
Neti pot after surgery?

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After surgery, I'm not allowed to blow my nose for an entire month! I think it's b/c of the pressure, which could open up the surgical incision. I probably blow my nose 4-5 times a day to deal with mild congestion. I can handle the idea of being...
Surgery Success Rates and Risks

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So, after MUCH consideration, I think I am going to move ahead with surgery. Thank you all for your thoughts and sharing your experiences--it's been helpful. I've now met with three separate doctors who think that surgery is the best option for...
Surgery--Who's Had It?

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So, after being encouraged for months by my endo, I finally met with a surgeon today. He also highly recommended the surgery, since the meds are just not effective for me. My prolactinoma is small--4 mm-- and my prolactin levels are on the...
drug-resistant prolactinoma

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I've been on bromo and carbergoline on and off, and while the drugs have lowered my prolactin levels, they've never gotten into the normal range. I've been told that my prolactinoma is resistant to the drugs. Recently, however, a doctor friend...
Stalk Effect--what is it?

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I've heard mention of the "stalk effect" and some folks noted on another post that it could be the reason that my prolactin levels haven't responded well to medicine. I can't seem to find any information on the stalk effect is, though. A little...
Recommendations for Good Docs?

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Hi everyone--it's tough to find good pituitary doctors out there, so I invite folks to post the names of doctors or med centers that they have had good experiences with. In the interest of keeping this posting positive, I suggest posting POSITIVE...
The Difference a GOOD Doctor Makes

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I've moved around a lot in the 14 years since my prolactinoma was diagnosed, and have seen a total of 7 different endocrinologists. Most have been good, a couple have been fantastic, and a few have been NOT so good. Everyone says that...
Considering Surgery So I Can Get Pregnant-Advice?

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Hi--I was diagnosed with a micro prolactinoma 14 years ago. I've been on different doses of Dostinex and Bromochriptine, and while I've managed to lower my prolactin levels, I've never gotten them below about 55. My doctors have told me that I may...

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