mgadvocate
Status: 4th treatment of Ritiximab. Did okay. Now wait several weeks for results.
Mood:
Ok
Offline
- I have said many times how fortunate that my MG diagnosis was made within 2 weeks of my onset of symptoms. My sister's were able to connect my symptoms to being very similar to my dads, who also had MG. I was tested right away and was seropostive...
- Invitation to anyone interested attending the New Orleans MG Support Group this Sunday, January 26th, from Noon to 2 p.m. for a Holiday Potluck Luncheon.Meeting location is The Elks Lodge in Metairie (2215 Cleary Ave.) The meeting will be a social...
- What an inspiration and helpful recommendations to lead a happy life.About three months before he passed away, 17-year-old Sam Berns gave this speech explaining his dislike for obstacles and his strategies for beating them. When he was 2 years old,...
- Rare combination of Myasthenia Gravis and ALS, responsive to MSC-NTF stem cell therapyCompany Awaits FDA Decision For Phase II TrialBrainStorm Cell Therapeutics Inc. announced the results January 6, 2014 of its most recent research on NurOwn, a new...
- Please take the time to read the attached article. I believe you will find it very refreshing to hear the perspective from a doctor in treating patients with a chronic disease. I especially like the article because it gives some great suggestions...
- This past weekend Stanford conducted their annual medical conference. This medical conference is totally different from any other medical conference.Patients are included in the conference planning, being speakers and the conference evolving around...
- George had shingles.Those of us who spend much time in a doctor's office should appreciate this!Doesn't it seem more and more that physicians are running their practices like an assembly line?Here's what happened to George:George walked into a...
- Myasthenia Gravis Foundation of America, Inc came out today with the online MG Patient Registry. The web link is; https://mgregistry.soph.uab.edu/MGRegistry/SignUp.aspxWhen you open the web site you are provided terms and conditions, that define the...
- Maybe there is hope to have patient participation research. Below is a link to an article The Trouble With Traditional Research: A Call to...
- Together We Are Stronger posterhttp://www.myasthenia.org/LinkClick.aspx?fileticket=kaf-jNu_crc%3d&tabid=40Wishing everyone the best.Bruce
- Would you like the answer to. Given my status what is the best outcome I can hope to achieve and how do I get there? The following resource was created by three brothers, one who had ALS. The group now has over 200,000 members incompassing almost...
- My heart goes out for every member who is still waiting on a Diagnosis. I get so frustrated hearing of so many horror stories dealing with doctors and medical staff. The art and science of clinical diagnosis are at the heart of the practice of...
- Congratulations to New Orleans MG Support Group for an extremely successful MG Walk today. The group had 200 online registrations and a large number of walkers who signed up on sight. We had a wonderful park for the walk and beautiful weather. ...
- Patient Safety Quiz The aspect of your care that causes the most risk? Think about your answer then check the follow article for the...
- Thought I would share the below information with everyone. I was not aware of this organization and their efforts. Hope everyone has a Good Rare Disease Day.-----------------------------------------------------------------------------Rare Disease...