Thanks for posting that Bruce! Tell me that guy is your Primary doc! He sounds absolutetly awesome!
Merry Christmas everyone!
Take care, Kelly

Wow all I can say .

That was nice. I am thankful for my neuro; he could have written this article. Thanks for sharing this!

Thumbs up for sharing, thanks. He is a lot like my new doc. The last one I had tried to tell me I needed psychiatric help cause there wasn't anything wrong with me, and I was just looking for a reason to not work. Every day I give thanks for finding the doc I have now. The article is spot on.

Thanks for this.....This is very well written for sure. I know I often bring in too many problems at once to my primary. who is about 100 miles away....but my neurologist who is over a thousand miles distant expects me to bring a list of everything and thrives on this approach being better able to help me if he gets it all at once so he can see patterns. I am still forging a relationship with both but I have to keep in mind how each one deals differently with information. i really appreciate this article so thanks for posting this! Marie

Marie, for those of us who are complexly ill, like you and I unfortunately are, failing to report symptoms in a timely manner can mean a missed or delayed diagnosis and prolonged misery. I report them all now because my filter has often been wrong. I am fortunate that my neuro admits freely that he doesn't know what to do sometimes and that he welcomes the support of an immunologist and rheumatogist. We need all doctiors to be honest in this way and for ourselves to make every effort to help them help us.

Wow, Bruce! What a great letter!
I bookmarked it, for future reference.

Hopefully, Ellen & I will be in Florida - in 3 or 4 weeks.
(... it depends on circumstances, here at home ...)

We look forward to seeing you, while we are there!
- Ross
PS: Several weeks ago, I emailed the Florida MGFA - asking about meetings. So far, no response.
Have you ever been to one of their meetings?

Hi Ross,

I actually go to New Orleans MG Chapter, which is much closer than the FL Chapters. Plus, my wife loves going to New Orleans.

Bruce

For clarification, I am honest and report all symptoms. But I am careful to clarify their overall timing in what is new and different as opposed to what is an older symptom and ongoing and have learned I do not need to bring up all the old ones every time I walk in the door of an office.

It helped my primary on my most recent visit to differentiate the newest numbness and weakness in my right arm that did not respond to pyridostigmine. It turns out to be radiculopathy involving C8 and my differentiating it from the weakness I feel from my on going muscle weakness and numbness that comes with neuropathy or Raynauds. Boy are we all complicated! How we present information tho can be instrumental in the physician choosing the right tests, in my case an EMG and nerve conduction study, that led to more answers.