MissyBoston

Activity

• Post-Traumatic Stress Disorder (PTSD)
  

  Discussion Comment

  Posted by: MissyBoston

  Posted: 03/04/2019

  MissyBoston commented on the discussion Walk a Day.

• Post-Traumatic Stress Disorder (PTSD)
  

  Discussion Like

  Posted by: MissyBoston

  Posted: 03/04/2019

  MissyBoston liked the discussion Walk a Day.

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  Joined New Group

  Posted by: MissyBoston

  Posted: 03/04/2019

  MissyBoston joined the group Post-Traumatic Stress Disorder (PTSD).

• Neurofibromatosis
  

  Discussion Comment

  Posted by: MissyBoston

  Posted: 03/04/2019

  MissyBoston commented on the discussion driving.

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  Joined New Group

  Posted by: MissyBoston

  Posted: 03/04/2019

  MissyBoston joined the group Neurofibromatosis.

• Living with NF
  

  It looks like the owner is now a deleted user is t

  Posted by: MissyBoston

  Last Reply: TennesseeKidd 12/11/2019

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  hi I am Melissa AKA Missy looking for a support group for people with NF or a related illness I have Angiolipomas all over my body I'm starting to have pain at my tailbone and numbness in my extremities I'm asking for help because the doctors just scratch their heads in treat me like a number I do like my specialist in Boston and he does go out on a limb to do anything he can for any of his patients but when you have something real in their learning about it through you verses being able to...

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  Joined New Group

  Posted by: MissyBoston

  Posted: 03/04/2019

  MissyBoston joined the group Living with NF.

• Neurofibromatosis Expert
  

  Where are the support groups for people with NF?

  Posted by: MissyBoston

  Posted: 03/04/2019

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  is there any NF chat groups around at all anymore pretty please I'm in Boston and when my doctors did research about my a tumor disorder which was falsely diagnosed at NF I have something that they don't know enough about and they don't know if I would pass it on to my child they're not my mom sister had the same thing but died at 21 I'm 47 and I'm covered in painful tumors that are called angiolipomatosis I see the best doctor at MGH unfortunately the only thing we can turn up is research from...

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  Joined New Group

  Posted by: MissyBoston

  Posted: 03/04/2019

  MissyBoston joined the group Neurofibromatosis Expert.

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  New Friend

  Posted by: MissyBoston

  Posted: 03/04/2019

  MissyBoston became friends with TeamDS.