MissyBoston

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It looks like the owner is now a deleted user is t

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hi I am Melissa AKA Missy looking for a support group for people with NF or a related illness I have Angiolipomas all over my body I'm starting to have pain at my tailbone and numbness in my extremities I'm asking for help because the doctors just...
Where are the support groups for people with NF?

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is there any NF chat groups around at all anymore pretty please I'm in Boston and when my doctors did research about my a tumor disorder which was falsely diagnosed at NF I have something that they don't know enough about and they don't know if I...

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It looks like the owner is now a deleted user is t

Where are the support groups for people with NF?