Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Anyone able to stop mestinon?

Newfiemom18
Newfiemom18

Hi,  I'm curious if anyone has 


been able to stop taking mestinon for any length of time after doing their treatment with prednisone, cellcept or cyclosporine etc? Is that possible?


I began treatment last summer with mestinon for general MG and added cyclosporine a few months ago(i can't take prednisone), and I am finding that I am feeling  much stronger on many days where I don't need mestino n . I probably take it two or three days a week but only half a pill once or twice a day. 


I just wondered about people who have had mg a long time and how their treatment progressed.


Thanks, Cyndi

Rhanson
Rhanson
When prednisone began to work Mestinon just gave me twitches so I stopped it.
Good luck
Russ
fihghter
fihghter
Hi Cindy

in regard of your question, the first thing that i would suggest is to have a extented conversation with your neuro in regard of your meds. because it depends too, on the level of classification of yyour mg.

i myself came out of my worst relapse and today doing fine i am at the minimun of both meds, 30mgs dayli of mestidone and 5 mgs. of prednisone every other day

some time i skip both meds individualy couple of times a week.but only doing that after have taken cars of the 3 major problems that case cause spikes on mg., wich i have stated in manny blogs answers
stress, excertion, control of emotions.

also i would sugest that you check the following site as it is important for all to know, where all meds stands, overviews,side effects ect.
the site is drug.com

sometimes collitions neetwen drugs (incompatabilty) enters in play

best of luck (fighter)
cgreens
cgreens
I eliminated mestinon with the use of Cellcept only treatment. I have been on Cellcept only for sveral years and have just began to taper down. I am currently down from 1000 MG 2X a day to 750 MG 2X a day. I will do this for one year before reducing again.

While waiting for the cellcept to kick in, I did get my Mestinon dosages pretty high to combat the symptoms. That being said, Cellcept is the safest and arguably the most effective drug for treatment of seropositive MG