jbelar
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- I reached maintenance and am going on my second month of no phlebs. My ferritin levels reached 22, iron 110 and sat % 45. Sounds great but what I have noticed is when I do overdo things and do too much in a day, I get extremely worn out. Like, hit...
- My brother hasn't tested for HH yet even though my sister and i both have the C282Y genes. He did recently find out he has diabetes so I was wondering how many of you have diabetes due to HH?
- Looking for opinions, facts, etc. Does anyone know why people experience anxiety? Does it always have to be that there is a chemical imbalance or can it strictly be a triggering event? I know hormone imbalance can be one reason and serotonin...
- Were any of you instructed to take a fasting blood glucose test upon diagnosis? If so, were your levels high, normal? I was at 99 (1 pt or whatever the measurement is) away from being pre-diabetic. I totally don't fit the characteristics of a...
- The other night I got really upset and afterwards felt chest pains. I wasn't feeling anxious before but when I called the advice nurse, she said it sounded as if I was having an anxiety attack. What are your thoughts?
- For all the women in the group. Can you tell me how birth control has played a roll in your diagnosis. I am trying to figure out what I want to do for now. Long term bc usage scares me.Even though my ferritin is down, I feel i don't want to push my...
- Does anyone know if there is a link between hemochromatosis and endometriosis?
- I am new here and wanted to see what you all think. I am 34 and have already had 3 children. Back in my early twenties, i began experiencing sharp pains upon ovulation. The pain was pretty bad where it would make me squirm. I have been experiencing...
- Reached maintenance. Will test once a month to measure how my body loads. I am really curious.
- My last labs came back as such:ferritin - 40iron - 157sat % - 64%My ferritin number is good but I still need to get my iron and sat % number down. How low can ferritin go?
- Ok, so my labs came back as such:Ferritin = 40Iron = 157Sat % = 64%ALT = 16Alkaline phosphate = 70Does anyone know why my alkaline phosphate test is rising. it has gone from 43 in July to 70 now. I realize this is stil within normal rnage but has...
- Ok, my girlfriend's wedding is coming up and I would really like to have a couple glasses of wine. I have been so good and haven't had anything since I was diagnosed. My liver tests are perfect and i show no damage to my liver. My levels have...
- Ok, so this may sound totally lame but when my mind is racing and I want to go to sleep, instead of trying to picture the ocean or something calm and nice, I find it easier to just say the word sleep (in my head of course), over and over and over...
- Got labs done on Friday for Phleb this week. Last time my levels dropped a lot. Iron went down to 126 and ferritin to 125 and % sat to 40%. Got test results back and my iron went up to 229 and % sat to 82% but ferritin continued to go down to 90....
- So, I have recently been having issues sleeping. I would say it has been a good 2 months of this now. My initial issue was that I would easily fall asleep but not stay asleep and then have trouble falling back asleep. I am tired and worried, each...