Hemochromatosis Support Group

Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.

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jbelar 09/20/2011

Ok, my girlfriend's wedding is coming up and I would really like to have a couple glasses of wine. I have been so good and haven't had anything since I was diagnosed. My liver tests are perfect and i show no damage to my liver. My levels have dropped a lot and I am nearly to my goal. Can anyone tell me if i will be ok to indulge a little or should i absolutely stay away?

NicolaToms 09/20/2011

Hello Jbelar,
If you have no damage to your liver I cannot see any reason why you shouldnt have a few glasses of wine at the wedding. All things in moderation . Enjoy your day.
Nic. X

YREKADC 09/20/2011

i concurr with nicole. alcohol help to absorb iron. so a little goes a long way. all things in moderation...
have one for me will ya?? i do have liver issues and have been without for 10 months. my liver is getting better, thankfully .

jbelar 09/20/2011

My drink of choice is wine. I am conflicted with it. The alcohol part of it helps absorb iron, however, the tannin part of it inhibits iron absorption like tea. any input on that?

NicolaToms 09/21/2011

Red wine is better for you than white. I havent had a drink for nearly a year and had one glass of red wine recently and it went straight to my head. He he so go careful. X

deleted_user 09/22/2011

My Dr says eat and drink what and when you want. Just know if you eat red meat daily you will be doing phlebs more often. So I drink and eat what I want. I have not had a phleb in 2 yrs. I start again in a few weeks. I have had HH for 7 yrs it took me a year of weekly phlebs before I hit maint the first time. So enjoy life.

mike1126 09/22/2011

sharonbre, did i read that correctly, you havent had a phleb in 2yrs. it took me a year to lower my levels and i go every 2 months.
my dr. said it was ok to have the occasional drink and eat red meat on a limited basis, so i have 1 beer a week and 1 steak a month.

deleted_user 09/26/2011

My doctor says the same, I have no liver damage so he says if I want a beer have a beer if I want a steak have a steak, I eat what I want I just eat it in moderation I usually have a few beers or some wine on the weekend. like I said before it's like dieting if you completely take yourself off of everything you enjoy what is the point of living if you can't enjoy it and even dieters have a treat too you have to otherwise you will go nuts.

we don't have to completely cut ourselves off of everything that has iron, just eat it in moderation your going to have to phelb even if you don't eat alot of foods with iron your body is going to take every piece of iron it can get and store it anyways so why not indulge once in awhile. You have to be happy and live too.

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