CMstanding
Status: Taking one day at a time and trying to stay positive. It's working!
Mood:
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- Take a look at this resource. Free Living Well Manual and Exercise DVD. I just ordered mine. Don't know how good they are, but they sound helpful. Need to get back on the exercise bandwagon. I was doing so well, but then got out of the habit...
- There have been some mention of weird leg sensations at night on some of the posts. I had this problem and found out it was Restless Leg Syndrome. Here is a description of RLS - "Restless Legs Syndrome (RLS) is a problem that up to 10% of the US...
- Just got an email and a link from the Michael J. Fox Foundation about a new resource for all of us with PD and our families. Check it out and bookmark this site! It looks like it will be a very useful tool! I love the Michael J. Fox Fondation!!! ...
- How do you tell the difference between the Parkinson's tremors that are caused because of the lack of dopamine and dyskinesia, which is caused from levodopa use?I have a new thing going on - and not sure if it is just the tremor in my leg and feet...
- It seems like some of our dear friends have gone in hibernation for the winter! I am hoping they are all doing well and are so busy they just don't have to time to get on the computer! I won't name anyone - cause there are so many and I don't...
- I can't believe I missed this! Many of you know I am a huge fan of David Zid! He has a Facebook site with tons of tips and information on Parkinson's Check it out - especially the tips! https://www.facebook.com/delaythedisease
- A dear friend just sent me this link to this video. A great song and reminder to us all that we are not alone and God will help us be overcomers!http://www.youtube.com/watch?v=z29olPjFbqg
- The nurse at John Hopkin's suggested I try adding the supplement, Creatine (5 grams twice a day) to my daily routine. She said they have been testing it as a neuro-protector and had pretty good results so far. It is still in the testing stage...
- I have been on Sinemet (generic version) for about 3 months now. What I have noticed is that when I first started with 1/2 pills (25/100), for several weeks that was enough and my shaking pretty much stopped and the other symptoms were better too. ...
- I know loss of smell is a common symptom of PD, but do any of you have days where you smell something weird all day long. I have this happen on and off - where all day long and several days in a row, I smell this kind of weird smell. It's hard to...
- Dr. Ray Dorsey, director for the Johns Hopkins Movement Disorders Center, is providing free - one time video consultation.Here is an article with info and a link and phone number for more...
- An excellent video conference (I hope this link works)http://event.netbriefings.com/event/youngparkinsons/Archives/midwest201211/Click on the above link and schroll down to "Taking Care of Your Sexual Self: Sexuality and Intimacy with Parkinsons "...
- My Neuro is suggesting I start Sinemet because of painful dystonia that I am experiencing in my neck and shoulder area. I have not decided if I am ready to go down this path yet, but need an ideal of what I may be facing with side effects when I...
- In case anyone is interested. They also live webcast some of the sessions and have a webcast archive for past conferences.http://www.parkinson.org/yopc
- Hubby and I were cleaning last weekend (well, mostly Hubby was cleaning and I was supervising), anyways, I found a booklet that the nurse at John Hopkins gave me at my last visit. I glanced through it on our drive home after she gave me, but then...