Parkinson's Disease Support Group

Parkinson's disease is a movement disorder often characterized by muscle rigidity, tremor, a slowing of physical movement, and in extreme cases, a loss of physical movement. The primary symptoms of Parkinsons are due to excessive muscle contraction, normally caused by the insufficient formation and action of dopamine, which is produced in the dopaminergic neurons of the...

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CMstanding 08/14/2013

The nurse at John Hopkin's suggested I try adding the supplement, Creatine (5 grams twice a day) to my daily routine. She said they have been testing it as a neuro-protector and had pretty good results so far. It is still in the testing stage (here in the US), phase III, so it has at least survived phases I an II. She said she thought it was worth looking into. The problem with neuro-protectors is - how do you really know if they are working or not? Anyways, I am considering it - what do I have to lose?

I may have missed this but has anyone else heard of this supplement or had it recommended to you?

debfromnj 08/14/2013

Makes sense to me. I think I will. It is not too costly. Do you drink it?

http://en.wikipedia.org/wiki/Creatine

CMstanding 08/15/2013

It looks like it comes in powder form and you can get it flavored or unflavored. You can add the unflavored to other beverages. I have not odered it yet, but intend to get some this weekend after I research it a little more. The nurse said to do 5 grams twice a day which is consistent with the amount they have been using for the research trial.

Cole50 08/15/2013

I have some of that in my cupboard. Bought it by accident two years ago. Body builders use it. I'll have to look into this.

grandson88 05/05/2016

My late grandpa used to take creatine, don't remember in what does though. But I know for a fact it did him much good, at least for a while.
Also, as a fitness enthusiast and tireless bodybuilder ;-) I take it myself, so it's safe for sure (yes, Coleo50 you're right bodybuilders take it)
You may wish to read more about it here:
https://www.muscleandstrength.com/expert-guides/creatine-monohydrate

terrapinstation945 05/05/2016

I take 2 teaspoons a day in my neuro/mitochondrial vegetable concoction...... especially before I exercise/work..........been doing it for 7 years and have posted about it but quit due to no interest.. .........off pd meds for 15 years....the benefits are too numerous to mention when one has google.......you don't know if it works....you do the best you can....limit your supplements and get your nutes through diet as much as possible....I take 4 supplements only .....Ca MG D combo.....acetyl l cysteine acetyl l carnitine, creatine. oh and Coenzyme 10.....so 5......the rest is from diet high in neuro-protectants ie: sulfur etc.........blah blah...

BT

terrapinstation945 05/05/2016

CM you brought this up in august of 2013 ........DEBFRMNJ.. said..........." Sounds interesting. Good 3:30 am reading. CM posted that she was told that creatine, which body builders use, has been very successful in testing. I'm going to see if my health food store has some this weekend."

also from aug 2013 from me........"i excercise HARD 10 hours a day despite fatigue, meditate and yoga and follow mitochondrial/hunrter gather diet, supplement with multiple neuroprotectants, winter cherry, ginseng, NAC, AL-carnitine, creatine, green tea extract, chocolate, Vit E and C in high dose, lots of homemade fish oil, etc etc etc. Lots of kale, sprouts etc.

brer t "

CM........"and...I told you about it ....in august of 2013.

Your response.."Terrapins, I am fascinated with your no meds journey. What are you doing naturally to treat your symptoms? I GOOGLED treating Parkinson's without meds and found 2 interesting sites - and a book by Janice Walton-Hadlock, "Once upon a pill". Some interesting stuff. It sure has me thinking. Now my head hurts. Lol "
Bag of tricks:
"Brain Food"/ Mitochondrial Health promotion./General health needs. Most in supplement form.

Target.....CoQ10 1,200-2,400 mg a day as ubiquinone or 200-300mg as ubiquinol.

Creatine..1,000-2,000 mg per day

Omega 3's 900mg daily, DHA 255mg,EPA 647mg, Vit D3 1000IU per day appx.... from fish oil or grass fed beef, preferably deep sea fish such as anchovie, cod liver oil, etc. Black cod oil is one of the richest.
Vit D 500-6,000 IU's daily
B complex B6 B12 B9 B1 (l-dopa blood brain barrier crossing blocked by some of the B's but are still crucial to healty neuro.)
Acetyl L Carnitine 1.000-2,000 mg daily
Green Tea extract 725-1450 mg daily
Trans Reservatol 250-500 mg daily
Probiotics with every meal
Curcumin 400-1200mg daily
Melatonin 1-5mg once a month for 3 day's
N-Acetyl-Cysteine 600-1,800mg daily
Lipoic acid as R-Lipoic 300mg-900mg daily
Mucuna Pruriens (L-dopa) (dopa bean) 300-1200mg daily standardized!
The above target the brain for the most part and i take the minimum suggested. "

just search the discussions.....

posted this in feb this year......Creatine -- Some studies suggest that taking creatine, an amino acid that helps supply energy to muscles, may help slow progression of Parkinson's among people who are in the early stages, and who do not need medication to control symptoms. In another study, creatine did not work as well for people with advanced disease. Creatine may also help people with Parkinson's get more benefit from resistance training. Tell your doctor about any kidney problems you may have before taking creatine

and this ". Metabolic support for mitochondria has been demonstrated with phosphatidylserine, acetyl-L-carnitine, and coenzyme Q10.47 A recent study links creatine, an amino acid compound of methionine, glycine, and arginine, with mitochondria metabolism."

just search discussions.....

peace

BT

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