Aworriedwife's Posts | DailyStrength

Status:

Mood: Ok

Offline

< Back to Profile

Somatuline Depot experience

0

My husband just had his second Somatuline injection and I thought I'd share his experience, for any newbies in the future.1st shot - Immediately got nauseous and developed severe stomach pain. 10 on a pain scale of 1 - 10. The next day the pain...
Cost of medication

0

So, we finally got prior authorization for Somatuline Depot. Imagine my shock, when the pharmacy told me we'd be responsible for over $1,400 a month toward the cost of the drug. How does everyone afford this? Am I missing something? ...
New technology for pituitary surgery

0

Just found out my husband's surgeon is pioneering a new technique here. Can't help but feel disappointed that it wasn't being used when he had his surgery. Of course, at the rate we're going, we may give it a try in the...
Revisiting the diet/IGF-1 relationship

0

Ok, I know many of us over analyze things in an effort to understand this disease, but Tbecker has brought up the issue of Vegan diet and IGF-1 numbers in the past, and I thought this might interest her and others. Again, I may be trying to find...
Fainting or near fainting episodes

0

Hi,We had to take my husband to the ER because of multiple fainting/near fainting episodes. He would get sweaty, a wave of a tingling sensation would wave down his body, he was confused, disoriented and had tunnel vision. They admitted him and did...
Does 2nd surgery mean a lumbar drain?

0

To any of you who've had to go through this surgery twice, does a person always have to have a lumbar drain the 2nd go round?
Would you have 2nd surgery?

0

My husband's 1st surgery was July 21st and he's done amazingly well. Pre-op GH around 120 IGF-1 around 1200. Post op GH .87 IGF-446 and not budging (uppermost limit for his age should be 296). MRI shows a 5 to 6 mm tumor remnant slightly into...
Shedding skin like a snake

0

Shorty after my husband's surgery, all the skin on his hands started peeling. He was left with incredibly smooth, soft skin. Several weeks later his feet started doing the same thing. I know that thickened, course skin is a symptom of acromegaly....
Post op GH levels

0

Test results are back. Blood drawn 1st and 2nd day after surgery. Both days showed GH levels between 1 and 2. Pre-op level was 128. I'm so excited. I hope I'm not getting too excited too soon, but it's nice to get good news after so much bad...
Surgery is over!

0

My husband had is surgery on 07/21. The neurosurgeon was able to remove the entire tumor. The ENT removed a sinus cyst and repaired a severely crooked septum while in there. They are expecting numbers to drop dramatically, but can't guarantee...
Getting real pictures out there to help others.

0

About a year ago I decided something wasn't quite right with my husband. I started looking online and found a word I'd never heard before...Acromegaly. I read about it and things fit. But, it was a rare disease. How silly of me to think my...
Acromegaly confirmed

0

My husband's lab results are in. Very high IGF-1 and GH. Low testosterone. Scheduling test for adrenal gland function. MRI in 1 week. Sleep study for suspected sleep apnea in a few days. Follow up with endo. in 3 weeks after all test results...
Tumor size and did they remove it all?

0

My fears were confirmed and my husband has acromegaly. I thought I was prepared for the news, but it was still shocking. Could you please share what size your tumors were and if they were able to remove them completely with surgery? We are...
Could this be acromegaly?

0

I've been worried for awhile that my husband has this disease. His hands are large and puffy and he had to get a new wedding band. He has strange, deep ridges in his head and forehead. His nose is very wide and his lips have gotten large. His...