Minabeena

Activity

• Myasthenia Gravis
  

  Has anyone tried Keto while on Prednisone

  Posted by: Minabeena

  Last Reply: Nanosecond 03/13/2019

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  Do you guys thing Keto or any other diets are safe or even effective while still on prednisone...also should just wait till I’m off to start losing weight or can I be proactive.

• Myasthenia Gravis
  

  I need advice on finding more effective for my mg

  Posted by: Minabeena

  Last Reply: cgreens 03/15/2019

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  So I’ve had Myasthenia gravis for about 9 months now and it’s been the hardest thing ever. I started off being admitted several times with no clear diagnosis, even after countless blood test. Then was referred to the leading hospital in my state when I was diagnosed using and EMG...and weeks later another blood test confirmed that I have Myasthenia. After that I was given ivig which didn’t work. Spend 2 months in the hospital for acute respiratory failure. Then another 1 in the hospital...

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Minabeena

  Posted: 09/24/2018

  Minabeena commented on the discussion How effective should plasmapherisis be?.

• Myasthenia Gravis
  

  How effective should plasmapherisis be?

  Posted by: Minabeena

  Last Reply: anomaly895 10/02/2018

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  This is my fourth month of being diagnosed with Myasthenia and I’ve had a handful of crisis; the worst one was last month which lead me to being intubated. The doctors did 5 rounds of plasmapheresis which ultimately brought my breathing back to normal and took away all my symptoms. I felt like I was in “remission”. However a couple days ago my symptoms started to flare up and after a visit with my neurologist Im now going to undergo another 5 rounds of plasmapheresis. I honestly don’t...

• 

  Joined New Group

  Posted by: Minabeena

  Posted: 05/10/2018

  Minabeena joined the group Myasthenia Gravis.

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  New Friend

  Posted by: Minabeena

  Posted: 05/10/2018

  Minabeena became friends with TeamDS.