Suzannabanana

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Good news, everyone! Oral Octreotide!!!

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http://www.ncbi.nlm.nih.gov/pubmed/22539587?dopt=Abstract&otool=upittlibOral administration of octreotide was found to be as effective as sub-Q injections! This isn't relevant for me, since my tumor just laughed at the sandostatin, but I figure it's...
Looks like another surgery...

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Well, I had a miscarriage. So I'm going ahead with the second surgery in hopes that I'll be healthier for the next time. As soon as I stopped the pegvisomant my IGF-1 shot up to 900. They said there's a small risk that they'll damage my pituitary,...
Holy crap!

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I just found out I'm pregnant! My doc wants me to go off the pegvisomant, but I'm a little concerned....any thoughts?
IGF-1 NORMAL!

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Guys, I never thought I would be saying this, but I just got my lab results after starting pegvisomant two weeks ago and my IGF-1 has gone from 1100 to 380!!!! I'm so excited I can't stay in my chair at work!My endocrinologist sent me an email...
Curcumin

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I know there was a thread about this a while ago, but I've been reading more and more research about curcumin and wanted to bring it back into the discussion.I've been taking some supplements for a few months, and I definitely feel better than...
GH going down, IGF-1 going up!

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I am so discouraged and angry right now. After a month of increased Sandostatin dosage (40mg!), my IGF-1 went from 805 to 1050! My GH went down a point (from 8 to 7). What the hell? I'm starting Pegvisomant next month, and that is literally my last...
The Pill

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After reading throught the literature on the effects of estrogen and estro-progestrins (birth control pills) on acromegaly (they dramatically lower IGF-1 in most women), I'm wondering how many women developed acromegaly after years of being on the...
Sandostatin/gallbladder removal

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My endocrinologist has decided that she doesn't want to increase my dose of sandostatin until I have my gallbladder removed. I have had some pain in the past, and the ultrasound shows some sludge, which has been there since before the sandostatin....
Estrogen/Tamoxifen - cures for acro???

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Here are two recent studies I found that contradict each other. One found oral estrogen to work as well as Octreotide, and the other found that Tamoxifen (an anti-estrogen), cured a particularly stubborn case (entirely by accident!)This could be BIG...
Sandostatin

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For those of you guys on the long-acting Sandostatin, did any of you start it without first trying the short-acting version? My endo wants to start me immediately on the long-acting, and I'm a little concerned.
Surgery Tomorrow!

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Wish me luck. Hopefully my next post will be about how much better I feel!
Newly diagnosed!

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So my official results are in: HG=379, IGF=1500. Are these numbers high?

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