jlynn032

It's been two years since I was last here...  They have been long years, full of some strife and some highlights.  I did finally get an official dx of MS as well as fibromyalgia.  I have had...

The weather has cooled off a bit.  Finally feeling human again.  I'm sure not looking forward to summer!   I hope you all are doing well. ~J 

I have an appointment with a new neurologist in Eugene on June 13th.  There is so much I need to convey to him that I hope I can get it all out in some semblance of order.  They say all of the...

I saw the MS specialist at OHSU in Portland yesterday.  The trip was so grueling I don't think I could make it again.  The neuro said I should establish with a neuro closer to where I live.  She...

Had a stressful week.  Had to give up the rest of my transcription.  Just can't keep it up anymore.  Now I have to train a FOURTH transcriptionist in nearly as many months!  Ugh... Last Sunday...

I had what I thought was a seizure this morning, but I looked online and saw that tremors are just another fun symptom of MS.  I have arranged for someone to take me to work and pick me up...

I received a notice today from Social Security stating that I am not eligible for SSI because I have an IRA.  I am afraid this will also deny me for regular disability.  Tomorrow I am planning on...

I had my Social Security appointment yesterday.  It think it went very well.  We spent an hour going over my medical and work history.  I also gave them a 2-inch stack of medical charts and tests...

I think I forgot to add that the antiphospholipid antibody test was negative.  I'm not completely sure, but I believe that was my last, best hope that it was something other than MS.  My neuro...

My MRI showed no new lesions!  I think the Copaxone is helping.   Also, that awful flare is FINALLY easing up.  I think the lighter work schedule is helping.  Heck, I know it is.  I just needed...

I'm feeling much better today.  Last night I couldn't fight my way out of a wet paper bag!  Had a bit of a traumatic MRI...the tech had a lot of trouble getting a vein to get the dye into.  He...

I had my MRI today.  This was my fourth one since last June, and the third one of my head.  I asked the tech what "increased signal" meant, as that was what they put on my last MRI report.  He...

My breathing has become more labored, and my body more fatigued, that my voice is starting to go.  I am wondering if it might be my heart.  Is this something that is common with MS?  I have...

My PCP finally got fed up with waiting around for my neuro to get it together.  He is going to refer me to a different neuro.   I found out today that one of the blood tests my neuro ordered is an...

So, while I haven't given up altogether, I have decided to go on disability and try to just work three days a week for 15 hours.  I am meeting with a disability counselor who specializes in MS, as...