Emmakate09
Status: life is good.
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- Hello!I was diagnosed with fibromyalgia a few month ago by default. I feit the symptoms except for that my pain is only from my lower back down. I was rear ended in a go kart a few years ago and had some lower back pain but it went away after a few...
- Its been a long time since i've been on here, but I have a good reason!My "fibromyalgia" is pretty much under control. I'm able to walk long distances and stand for a lot longer than I use to! :) I say fibromyalgia in quotations because my doctors...
- So i went back to my doctor after being fed up with my other doctor jut looking at my and telling me she didn't know why my joints hurt all the time. He did some blood work which didn't show anything. I went to my hematologist for my yearly apt and...
- I went to my Hematologist today and he said my ferritin is down to 15! Which is good and not so good. Its great because obviously that's better than 1500! but I was hoping that my iron being high would be an explanation on why my joints have been...
- I had a minor surgery to remove a cyst from my lower lip today, and my anesthesiologist asked if i had any thing wrong with my blood and I told her that I have Hemochromatosis. She looked at me like i was speaking in tongues! I explained what HHC...
- Hello!I got a call yesterday from the Iron Disorders Institute and I was asked to share my story at the next conference! She said it'll be around the same time (oct 8-9) in Charlotte NC again. She asked me 3 simple questions about information that...
- Sorry that this isn't about HHC, but i could really use some prayers.My friend Matt Payne committed suicide on friday. He was a good friend, and the most stand up guy i knew. He offered to beat up boys that were bothering me, and was always there to...
- Does any one else have the H63D and S65C Mutation? i learned at the conference that only 1% of people with HHC have this combination, and its one of the "better" ones to have. I talked to the women in charge of the conference and she said that i...
- The conference is only 2 days away! I'm flying out with my mom at 11 tomorrow! Words can't describe how excited I am! i will post everything i learned as soon as i can after!To the others that are going: If you see me, feel free to come say hi! you...
- So I'm thinking about getting a tattoo, but i'm worried i won't be able to give blood if i get one. Does anyone know how long you have to wait to give after getting a tattoo? I think its kinda funny that I wanna get the tattoo about my struggles...
- So i have blood for the first time yesterday. My hematologist said that I wasn't loading bad enough to start phlebs but he suggested that i donate blood. Now that's i'm 19 my weight doesn't matter, so i finally got up the guts to do it.I felt fine...
- This sunday i'm leaving till friday to chaparon my youth group's junior high mission trip.Its 4 longs days of scraping, priming and painting houses in Birmingham. My back and fatigue have been pretty bad lately so its gonna be a rough week, but...
- I went to my spine specialist today and since my back isn't getting better, he decided to order an MRI (which i have tomorrow night) and to do 2 steroid injections on either side of my spine. I was pretty nervous for the injections, i've had 3...
- Hello!i have searched facebook a few times, and have had no luck finding a good HH group. so i started one! i hope if you have a FB account that you will join. Just trying to spread the word about HH.here's a...
- So i'm new, so i guess i'll start with some backround info.I'm an 18 college freshman, i was very active in high school but have calmed down a little since i started school. I have Hemochromotosis, which is what originally brought me to DS.My back...