Hemochromatosis Support Group
Hemochromatosis is a hereditary disease characterized by improper processing by the body of dietary iron which causes iron to accumulate in a number of body tissues, eventually causing organ dysfunction. It is the main iron overload disorder. Hemochromatosis is notorious for having symptoms that are often initially misattributed to other diseases.
Does any one else have the H63D and S65C Mutation?
i learned at the conference that only 1% of people with HHC have this combination, and its one of the "better" ones to have. I talked to the women in charge of the conference and she said that i might never have to to Plebs! She said that I won't load like people with 2 copies of C282Y. Which would explain why I was anemic after I gave blood.
I asked her about going on a birth control that you won't have a period for 3 years. She never told me whether she thought it would be okay or not, all she said was that I have a high chance of miscarrying. Which i didn't really want to be reminded of. lol
Since I don't load nearly as fast as people with the C282Y gene what do you think about it? I would continue to give blood if my numbers rose, but the fact that she mentioned miscarriages kinda scared me. I'm only 19, no where near ready for a family for quite a few years.
Any comments/suggestions?
i learned at the conference that only 1% of people with HHC have this combination, and its one of the "better" ones to have. I talked to the women in charge of the conference and she said that i might never have to to Plebs! She said that I won't load like people with 2 copies of C282Y. Which would explain why I was anemic after I gave blood.
I asked her about going on a birth control that you won't have a period for 3 years. She never told me whether she thought it would be okay or not, all she said was that I have a high chance of miscarrying. Which i didn't really want to be reminded of. lol
Since I don't load nearly as fast as people with the C282Y gene what do you think about it? I would continue to give blood if my numbers rose, but the fact that she mentioned miscarriages kinda scared me. I'm only 19, no where near ready for a family for quite a few years.
Any comments/suggestions?
I have since had it out and getting reg periods now so it might keep me in check better.
talk to your doctor about it and see what he says, try it out if you want and if you see your numbers rising fast then stop it or have it removed and resume with a normal period.
http://www.ncbi.nlm.nih.gov/pubmed/12180078