Sweetadrena

Activity

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  Overwhelmed

  Posted by: Sweetadrena

  Posted: 04/03/2017

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  I am a 47 year old single female who has always been extremely close to her parents.  I never had much confidence in myself and due to my weight feel unlovable.  I have done everything with my parents.  I never married, never had kids and now find that my dad has Myasthenia Gravis and just had surgery for kidney cancer.  He has been like a rag doll-stuck to his chair.  The very active handyman of a dad that took care of the house and took care of us is now this fragile, weak old man.  My...

• Myasthenia Gravis
  

  Could these symptoms be medication side effects?

  Posted by: Sweetadrena

  Last Reply: jagjad 04/03/2017

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  So after my dad was diagnosed with Myasthenia, they discovered a tumor in his kidney.  They finally got him to a specialist and he got the plasma transfer 3 days in a row and plasma donation on the last day so he could get his surgery.  Since the plasma transfers he has not been exhibiting any of his previous symptoms from the Myasthenia.  Last night we had to rush him to the ER however because he was extremely flushed, nauseated by food, refused to eat, feeling nauseated and dizzy, and...

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Sweetadrena

  Posted: 02/21/2017

  Sweetadrena commented on the discussion Extreme frustration.

• Myasthenia Gravis
  

  Discussion Comment

  Posted by: Sweetadrena

  Posted: 02/20/2017

  Sweetadrena commented on the discussion Waiting for a Diagnosis.

• Myasthenia Gravis
  

  Extreme frustration

  Posted by: Sweetadrena

  Last Reply: Rhanson 02/22/2017

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  My dad was recently diagnosed with MG and when they did the ultrasound on his kidney to see if he could take the medication, they found a tumor on his kidney.  The tumor is very slow growing and they say the operation is very simple, but they are concerned about the MG.  His neurologist had him up to 3 pills of Mestonon a day but he was still slurring his speech so she increased it to 4.  Now he is getting extreme cramps, making so much saliva he is almost choking on it and having trouble...

• Myasthenia Gravis
  

  Suggestions for swallowing problems?

  Posted by: Sweetadrena

  Last Reply: Rhanson 01/20/2017

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  Hi.  My dad has just been diagnosed with MG.  He is having extreme difficulty swallowing anything and has lost 16 pounds in 2 weeks.  The speech therapist recommended a Vitamix, but we are not sure what to blend?  We tried a pasta mixture but he was not able to eat.  We are not even real sure how the Vitamix works or if we should get a Magic Wand instead?  I tried stuffed shells for him but he was not able to eat the shells.  So far he is living on the cheese mixture and applesauce. ...

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  Joined New Group

  Posted by: Sweetadrena

  Posted: 01/18/2017

  Sweetadrena joined the group Myasthenia Gravis.

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  New Friend

  Posted by: Sweetadrena

  Posted: 01/18/2017

  Sweetadrena became friends with TeamDS.