That sounds very painful. iI can't say I have the exact same thing but I do occasionally get pain going right up one nostril to the forehead. It usually happens when I'm lying in bed.
When I mentioned it to the specialist I was told it was sinus pain and not related to TN.
I hope they come up with an answer for you.

Have you been to an ENT (Ear, Nose and Throat) specialist yet ? Of course it sounds like TN, but you should rule out any sinus problem too (especially with that sinus congestion and mucous.) That is NOT a symptom of TN. I have had a sinus infection with exactly the same symptoms.
Don't wait for weeks between treatments. If it's not helping in a week, call your Dr. I have been battling new onset facial pain since August 19, 2009. I have seen 5 specialists so far. I was put on Tegretol too. What a trip! I was shaking and hallucinating while driving-awful.
Keep up your spirits and know that you are not alone. We all deal with pain in different ways. Keep talking to someone, either here or at home. This is a very depressing condition, but you can find ways to deal with it. Find something to absorb your attention. Reading, painting, sculpting, or other hobby. This takes you out of the now (and the pain) and puts you in a different place. It really works!
I hope things get better for you and I'll say a prayer for you.
hugs,
Louise

Thanks for the replies and for the encouragement, I have seen 2 ENTs and had a CT scan, they said my sinuses are ok (hard to believe given my symptoms, but they were clear according to the results).

They did tell me that I have a crooked nasal septum and a septal spur that is poking on my inferor turbinate. This was back in the spring, then I was sent to see a cosmetic surgeon where he gave me the option of having septoplasty (to correct the aforementioned structual issue), but he could not tell me if that would stop the pain so I elected not to go for surgury at the time. I am going to see him later this month to evaluate surgury again. Thinking perhaps an MRI will help determine whether my condition can be fixed with surgury. For the past year I had been trying various treatments for rhinitis and sinusitis and have taken many antibiotics.

Anyway, I'm glad I found this forum as I've been fighing this alone since late 2008 (really). Helps to be able to share info like this with others who have similar experiences.

I would love to talk to you! You are the 1st person so far that seems to have somewhat simliar symptoms..at least involving the sinuses in general. I've been dealing with this horrific pain for 6mos now and in that short time have a long story..which I will spare everyone. However, most my pain is in my teeth, but is accompanied by strange sinus symptoms. I do have sinus inflammation, but have never had pain from it before. I recently found out that I too have a bone spur in my sinuses which my ENT says may "possibly" be pressing on a nerve and contributing to pain. After tons of rounds with antibiotics and various other things by other docs, my ENT is reccomending sinus surgery as well to correct my septum deviation, bone spur, and possibly scrape out some of the inflammation. I haven't scheduled the surgery though, as I am still not sure what the heck is causing all this.
Hopefully, this makes sense..it's almost 5am and I have yet to sleep, and have hardly eaten in days due to the pain, so I am a bit delirious to say the least.
Have you had any teeth pain at all or pressure or pain along your cheek bones?

I have the sinus thing too - I seem to get sinusitis a lot... I think I have some weird issue with my sinuses and with TN... I think they are kinda separate for me. I get two espisodes: pure TN (atypical) that settles around my right side upper teeth, jaw hinge, ear area and Sinusitis in my right maxilliary that affects the upper right teeth. I also seem to get sharp pain my right nostril and around the base of the nostril opening. I can tell the difference between sinus and TN because with one of them I get mucous and the other not. For the sinus type I can take Sudafed and it does have an impact. For the TN it does not make a difference.

Either way, I advocate sleeping with extra pillows to relieve any pressure on the sinuses.

You need to find a med that helps with the constant pain. I went from neurotin to Lyrica. Side affects, for me, were few; sleepiness, little woozie at times but my body seems to adjust. But I have gone from 50mg x 3 day to 100mg x3 a day. That increase seems to be what everyone with TN experiences. More and more drugs. I got a Gamma-Knife procedure 3 wks ago and that seems to be working- I'm afraid to say that outloud!
Sorry that your hurting. Good luck finding some answeres. Please keep us posted!
snowbird314

I just joined this group tonight because I have been having symptoms that sound similar to yours and they are really, really miserable, but so hard to explain to anyone. My doc also suspected Sleuders neuralgia, but I'm skeptical. However I've been to the ENT and allergist and the think its neuro. They suggested Lyrica but I'm already on so many meds and I am concerned about the side effects, especially since I'm not convinced it's sleuders. I hope you have had luck and are not suffering any more... and maybe you can pass on advice to me!

Thanks!!

Hello-
I also have similar symptoms with my TN and pain in my nose. I often explain it as feeling like I have a big bruise on the bottom of my nose like someone just punched me in the face, but sometimes it also feels like pins and needles. I am currently on Tegretol (200 mg twice a day) and Cymbalta (60mg once per day) and it has helped with the frequency of atattacks, but when I do have attacks they are just as painful. I hope that you find something that works for you soon.
Take care and good luck!
Hope you feel better soon.

I have the same thing with the left side of my nose. I had the mvd surgery and it didn't help still on 300 mg of tegretol 3 x daily and still have pain often. mine is TN i had 3 mri and that is what it come up as.I had it on thr right side 25 yrs ago and they done the injection on it to kill the nerve it made one side of my face numb, but no pain.I hope you get some ease soon. good luck

I know this is old, but I have very similar symptoms and they are treating trigeminal with Neurontin right now. I am glad I found this. Did yours ever resolve and what did you do? Thanks so much!

I have these same symptoms and being treated with neurontin as well.

I'm interested in learning what works!

I do find temporary relief with salsa which has capisin.

Ok - that's good. My mother in law got me to start the capsacin so I've been using that. I'm up to the 600 mg of Neurontin a day. The second pill is really making me tired. I hope I can make it to the 900 mg a day next week. The doctor said if not, they will switch me to Tegretol. How long have you been using the Neurontin mideyebrow? Thanks for your info!

I've been on 300mg of neurontin for over two years now. I tried to increase it, with devastating results. However, a friend is able to take one in the morning, one at night, sleeps great, feels better during the day.

Keep hydrated. The sinuses can be mildly dehydrated which adds to the problem.

Hola, ya se que es un post de hace tiempo pero necesito ayuda... Hace 8 meses me rompí la nariz, huesos nasales y septo y nadie me atendió en su momento. No tenía dolor. Pero al mes empeze con un dolor paranasal terrible.. tenía un hematoma septal que tampoco supieron ver... Desde entonces sufro de dolor crónico 24 horas en toda la nariz y maxilares . Tengo tabique torcido, nariz torcida y respiro también mal. Nadie ve nada y sin embargo deseo operarme de rinoseptoplstia para ver si puede irse tan terrible dolor. Solo deseo consejos y si alguien sabe de algún caso similar, con posible atrapamiento nervioso o presión.. gracias

I have a sister that as ATN she has huge flare ups with her sinuses and cant even touch her face for it being so sore and on top of that , she has TN pain. Her Dr. gave her a week of steroids to relieve the pain and told her to take 2 aleve morning and night for a week. She said it helped tremendously. Just read and thought i would pass this on.